Community Forum Archive
Topic: Advocate for Epilepsy
06/2020 | 2 Comments
I think closing the forum is a big mistake. I don’t use social media for a number of reasons and I haven’t had good experiences with the local...
05/2020 | 3 Comments
Please update this article https://www.epilepsy.com/learn/challenges-epilepsy/moods-and-behavior/mood-and-behavior-101/epilepsy-and-adhd to reflect...
05/2020 | 3 Comments
Does anyone have concerns related to mandatory facemasks some cities and towns are requiring in public spaces and stores? My small town (25K people)...
05/2020 | 0 Comments
I took action by speaking to congress again, this time asking them to co-sponsor the safe step act for our community.
05/2020 | 3 Comments
I took action and by speaking to congress and the congressman of our state of Maryland to include the disability community and the epilepsy community...
05/2020 | 1 Comments
05/2020 | 3 Comments
Hey everyone. I have written a fiction novel in which my main character lives with Epilepsy. I have researched epilepsy and spoken to a family friend...
05/2020 | 1 Comments
Hello, My name is Jennifer I was diagnosed with epilepsy at a young age due to trauma to the head. I am now 44 years old. A ton has happened in my...
04/2020 | 1 Comments
The need for telemedicine is great now for all. It is seen as a potentially useful tool for persons with epilepsy because of our driving /...
04/2020 | 2 Comments
Hi all! I recently became aware of the #SeizureChallenge on TikTok that has gone viral. It is dance videos that end in a fake seizure with water...
04/2020 | 1 Comments
I request the Epilepsy Foundation to lobby for universal health care health care as a human right , which follow it's mission . Many chronic health...
12/2019 | 0 Comments
Petition for Hollywood to Consider Making Epileptic Safe Movies Instead of Just Providing Nice Caution Signs Okay, so if 1 in 4,000 people have photo...
10/2019 | 4 Comments
The Breakdown in Patient/Doctor communication in Psychogenic Non-Epileptic Seizures (PNES)/Convulsive Syndrome of Unknown Origin (CSUO) as seen by a...
09/2019 | 3 Comments
11 weeks ago, my world was changed forever, and my faith shaken to its core.i received a frantic call from my husband Thursday, July 18,2019 to come...
04/2019 | 1 Comments
I live in the Capital of Florida and we have close to nothing. It's a joke. There is an organization called the Epilepsy Association of the Big Bend...
11/2018 | 1 Comments
Topic: Diagnostic Dilemmas and Testing Hey everyone. I could really use some advice on what to do for my two-year-old son. It’s a long story, so here...
08/2018 | 2 Comments
Calling out all doctors. Why myself and countless families are suffering due to your lack of caring I suppose I don’t know. What I’m getting at is...
07/2018 | 0 Comments
Hi everyone. This is one of the poems from my collection of poems about my daughter who died at the age of 25 from SUDEP. She was 7 months pregnant so...
07/2018 | 1 Comments
I’ve finally published my collection of poems that have taken me 13 years to write about the loss of my daughter Sam and her baby. It’s my journey...
04/2018 | 0 Comments
I have stress seizures & all volunteer coordinators think & say I can't be a volunteer because I'm unsafe to volunteer because I have epilepsy read my...