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Fighting off seizures
Thu, 09/10/2009 - 21:36Has anyone ever felt a seizure coming on that they felt they could control? My friend told me she is able to fight off seizures sometimes when she feels them coming on. Can that really happen and if so how?
Comments
Re: Fighting off seizures
Submitted by 3Hours2Live on Sun, 2009-09-13 - 18:26
Hi bunnae,
As I used to get plenty of warning of more intense seizures coming on the next day, with warnings the
night before my cluster seizure day, I've tried all kind of tricks to stop the impending seizures. Since
my cluster seizures previously hit about once a month, I even tried to find a way to induce them on the
best day possible just to get them over with for that month.
I never did find any technique that worked beyond simple seizures in limited environments; otherwise
seemingly successes were no better than chance random occurrences. I did find ways to induce minor
visceral sensations that were weak sensations similar to the very intense visceral sensations of moderate
aura. Then, disagreeable such sensations were much more easily induced than agreeable such sensations
(i.e., it's easier to induce "sensations of great fear" than sensations of "heavenly ecstasy," but both
can be accomplished with long enough and careful schedules of reinforcement). My very limited seizure
control success might just be from co-morbid Asperger's, rather than pseudo-Asperger's from imitative
side-effects of temporal lobe epilepsy and/or Geschwind Syndrome.
Recently, (but I already lost track of it) I read a sloppy research paper that I regard as overly "free
will" biased, that claims that focal seizures (such as warning aura) that spread through paths close to
"volitional" parts of the human brain, can be stopped in it's path by "willingly overloading" that
"volitional" part of the brain with intense activity. It seems a bit optimistic to me, then what do they
really mean? With the warning aura, yell loud obscenities at the moon? Hit my thumb with a hammer for
the distractionary pain? Stick my nose in a skunk for the distractionary smell? Think real hard about
a very difficult crossword puzzle clue? Take a strong swig of caffeine or a stiff drink, or just strongly
think about it? The closest I've came, is to take a strong dose of Keppra with a warning aura, but I
don't think that's what they meant. They also cited a few too many cases of success (with no failures),
but the different powers of thought being able to stop the aura spreading to a bigger seizure just didn't
work for me, even with many experiments with and without additional physical actions.
From a previous posting, a more scientific article cited was in:
I also tried variations with sensory stimulation to stop secondary tonic-clonics from strong periodic
clusters of seizures. Some reports of success from others with stimulation involve very counter-intuitive
results, esp. a 1989 article in Epilepsia, 30(2):168-174 "Sensory Stimulation for Inhibition of
Epileptic Seizures":
http://www3.interscience.wiley.com/cgi-bin/fulltext/119430454/PDFSTART
The posting, with other similar subject postings, was here at:
http://www.epilepsy.com/discussion/983031
This path only works when you're not signed on here, otherwise it defaults to the home page of
epilepsy.com frequently.
I hope this helps
When I feel a ting/aura
Submitted by superflyerfan on Sat, 2018-07-21 - 17:17
When I feel a ting/aura coming on, I do everything in my power to think of something completely different than the oncoming seizure. When I have tried to run away from Auras in the past, my problem is that all I had in my mind at that time was, indeed, the seizure. I try and think of other things, for example, football, the beach, family...ANYTHING BUT THIS POTENTIAL SEIZURE. It works for me EVERY TIME WHEN IM ALONE! When I am around people and feel one, I do my best to get away on my own to calm it down. The more I have to concentrate, the more severe the seizure is getting. Give it a try! I was born with, diagnosed, undergone surgery and am still an epileptic, but I will continue to fight God Bless Everyone.
Re: Fighting off seizures
Submitted by streamhopper on Sun, 2009-09-13 - 12:51
I think I fought off a siezure once by concentrating hard and visually locking on to concrete things like numbers and letters. And I think I have postponed the onset of one with that strategy.