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Each Journey Is Unique

As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy.

Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.


Camila Coelho Sitting by the Ocean


Camila Coelho

Adult with epilepsy

Brazilian-American fashion designer and beauty entrepreneur Camila Coelho lives with epilepsy. She launched her eJourney for National Epilepsy Awareness Month.

Read Camila's Story

Nina Mago smiling


Adult with epilepsy

When Nina faced misunderstanding in Uganda, she chose to fight back with education and awareness.


Read Nina's Story

Reagan Surgery Photo


Child with epilepsy

Meet Reagan. Reagan had brain surgery as a treatment for his seizures. He is currently seizure free with cannabidiol.

Read Reagan's Story

Hailey and Livy Scheinman (Twins) hugging.


Sibling to a person living with epilepsy

Meet Hailey, a Marvel's Hero Project real-life hero, and president and CEO of the Epilepsy Foundation Kids Crew.

Read Hailey's Story

Emily's Clinical Trial Journey

Brian and Stacey

Parents of a teen with epilepsy

Diagnosed with infantile spasms as a baby, Emily tried a clinical trial for a better quality of life.


Read Brian and Stacey's Story

Be inspired by our community and share your journey.


Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

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