Inspiring Others With Epilepsy Like Me

My name is Liv. I was diagnosed with epilepsy around 10 years old, and it has been quite a journey. I have been diagnosed with generalized epilepsy and Jeavons syndrome. Growing up, it was an obstacle with all of the medication changes, therapies, school absences, and doctor appointments; however, I have learned so much and have become a stronger person because of my epilepsy.

It was challenging to find the right treatment for me and to live a "normal" life. Medications are very tough as each one can have side effects. I struggled with my memory because of medication, and it took a long time to find the right combination that worked for me and gave me a good quality of life. Another challenge was figuring out what a "normal" life is to me. Growing up, I was very different from my peers and still am. I need to take my medication on time, and I can't stay up all night. My close friends needed to learn seizure first aid. It was hard for me to be different from my friends, but I needed to accept my reality and live my best life for my health and safety.

Once I finally understood my condition, I wanted to help in whatever way possible to do my part in the epilepsy community. I created fundraisers to donate to the Epilepsy Foundation, attended a New England Epilepsy Foundation summer camp, joined the Walk to END EPILEPSY®, where I walked 26.2 miles for the 1 in 26 people diagnosed with epilepsy, and am currently embarking on the newest journey of the Epilepsy Envoy team to speak to legislators.

I have a social media platform on TikTok to share my journey and connect with others affected by epilepsy. By sharing my story with others, I have related to more people than I ever thought I would. If I could inspire or support someone else like me, that would complete my life goals. Live your life and "seize the day!" There are obstacles and challenges for those affected by or living with epilepsy, but that does not mean you can't live your best life. You are a warrior and can do anything you set your mind to. 

Although I have epilepsy, I was still able to graduate from college with a degree in neuroscience. I plan to apply to medical school and speak at our college graduation. I currently work as an EEG Technologist and work with those diagnosed with epilepsy or seizures every day. Epilepsy may be something I have to live with for the rest of my life, but I hope to show others that you're not alone and you have a village of people behind you to support you on your journey.