Epilepsy Can Happen to Anyone

I live in the UK. I am sharing my story because I was inspired by other people who have shared theirs. I want people to know that epilepsy can happen to anyone worldwide.

My epilepsy diagnosis is new to me. Although I first had a tonic-clonic seizure in 2006, doctors didn't think much of it. I had several tonic-clonic seizures in June and July of 2020 and was finally diagnosed with epilepsy. I started having focal onset aware seizures, but then I was seizure-free for a while, so I thought about working and driving. Unfortunately, the seizures returned. In February 2023, I had two focal onset aware seizures in two days. In April, I had one seizure one day and two the next. 

My whole life changed dramatically. I went through depression and anxiety that worsened over the years. I even ran away from home and felt like taking my own life. The thing I found most difficult was the memory loss, weakness, and tiredness after my seizures. Through my experience, I learned that my health should come first, no matter what. I have stopped going to parties, being around loud noises, and staying up late. I also pay attention to light sensitivity. At the end of last year, I was taken off my medication, and my mood improved so much. I got through all of this with the help of my mum and an epilepsy nurse, who I am very grateful for. I would not be sharing my story today if it weren't for my mum. 
  
If I can overcome the challenges of living with epilepsy, I think others can too. It may be more difficult if you live alone, but try to lean on the people who love you and find a disability team who can provide alarms to let people know you are not well. My family recently suggested I not tell potential partners about my epilepsy for fear they might stop talking to me, but I say be yourself and don't change for anyone!

Be proud of who you are, and remember you can fight through difficult times with family or other support.