Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.
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A Seizure First Aid Training Success Story
It was a chilly and windy day in December. Thursday, December 3rd to be exact. I decided to go to the supermarket at lunchtime. I never ever go to the...
A Clinical Trial Changed Veronica's Life
#MyClinicalTrial: Veronica's Story Meet Veronica C., manager of philanthropic giving at the Epilepsy Foundation and a person with epilepsy who...
Tracy and Gen: A SUDEP Story
The moment you first meet Tracy Estrada-Hiett, you feel she has an important story to share. And she does. But in the next moment, you feel as though...
Epilepsy 'Rocked Our World'
The Epilepsy Foundation spoke with Chairman of the Board at Epilepsy Foundation Texas – Houston/Dallas-Fort Worth/West Texas (EFTX) Stephanie Fokas...
Amanda's eJourney with cCMV
In 2015, I became pregnant with my second child. At our 20-week ultrasound, we were told that our baby's brain was not developing as it should. We...
Ryker's Journey with CACNA1A Epilepsy
Ryker is a four-year-old boy who resides in New Jersey with his mother Charissa, father, and dog. He is fun-loving and his laughter brings a smile to...
Mighty Mason: A Doose Syndrome Warrior
“One day you will tell your story of how you overcame what you went through and it will be someone else’s survival guide.” -Brene Brown Having a child...
Hailey's Story: A Humble Marvel Hero
Twins Hailey and Olivia (Livy) Scheinman were born in December of 2004. Hailey was a healthy baby, but from the very beginning, Livy had difficult...
Emily’s Clinical Trial: An Opportunity that Made a Difference
#MyClinicalTrial: Brian and Stacy’s Daughter Emily Brian and Stacy’s daughter Emily started having seizures at 4.5 months old. Since then, it has been...
Nina's Story: Best of Both Worlds
Nina Mago lives in Uganda and runs the Purple Bench Initiative - Uganda. In 2019, she represented the entire continent of Africa at the 33rd...