Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Tuesday, March 05, 2024
No Matter What Happens, I’ll Be Okay
In 2011, I had my first tonic-clonic seizure. I remember having muscle spasms that morning and feeling so out of touch. I couldn't tell what was real...
Monday, January 22, 2024
Finding My Strength in a Supportive Community
Epilepsy caused a significant turning point in my life. It all started when I was 13 years old. I had my very first seizure at almost midnight on my...
Tuesday, December 19, 2023
Matthew's Journey With Dravet Syndrome
Matthew was diagnosed with epilepsy at 7 months old. We were convinced it was a one-time seizure. His siblings witnessed it and said he looked like a...
Thursday, October 05, 2023
Raising Awareness for Epilepsy and Mental Health
My name is Sid, and I have focal epilepsy and tonic-clonic seizures. My first seizure occurred on February 9, 2022, before I got ready for school. I...
Conquering Each Day With Epilepsy
December 15, 2019, is a day I will never forget. It seemed like a typical day. I was getting ready for midterms, and I felt in control. I took a nap...
Tuesday, May 23, 2023
Pursuing My Goals Despite Epilepsy
I started having absence seizures when I was 9 years old. They came out of nowhere. When you are a kid, having to go for weeklong medical testing and...
Motivated To Keep Moving
I have suffered from JME juvenile myoclonic epilepsy (JME) since I was 13 years old, which caused me to lose consciousness and control of my bladder...
Thursday, September 15, 2022
Seizures Have Not Stopped Me
I started having myoclonic seizures around 14 years old. I didn't know what they were at the time, and I figured they would go away on their own if I...
Perspective Is Key
My life with epilepsy began in 2016. I was diagnosed with juvenile myoclonic epilepsy (JME) after having a serious tonic-clonic seizure. As the years...