Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Tuesday, March 05, 2024
No Matter What Happens, I’ll Be Okay
In 2011, I had my first tonic-clonic seizure. I remember having muscle spasms that morning and feeling so out of touch. I couldn't tell what was real...
Monday, January 22, 2024
Finding My Strength in a Supportive Community
Epilepsy caused a significant turning point in my life. It all started when I was 13 years old. I had my very first seizure at almost midnight on my...
Tuesday, November 28, 2023
I Am 1 in 26
In 1970, I became one of the 26 individuals who developed epilepsy in their lifetime. At the time, my diagnosis was verbal auditory agnosia, which...
Thursday, October 05, 2023
Raising Awareness for Epilepsy and Mental Health
My name is Sid, and I have focal epilepsy and tonic-clonic seizures. My first seizure occurred on February 9, 2022, before I got ready for school. I...
My Life With Seizures
I started having focal onset aware seizures in childhood. The feeling was similar to when your stomach flips on a roller coaster but rushed up to my...
Conquering Each Day With Epilepsy
December 15, 2019, is a day I will never forget. It seemed like a typical day. I was getting ready for midterms, and I felt in control. I took a nap...
Tuesday, May 23, 2023
Pursuing My Goals Despite Epilepsy
I started having absence seizures when I was 9 years old. They came out of nowhere. When you are a kid, having to go for weeklong medical testing and...
Supporting My Brother in His Epilepsy Diagnosis
In May of 2020, my brother hit his head on his door, and what we thought was a concussion led us to find out he has left temporal lobe epilepsy. He...
Motivated To Keep Moving
I have suffered from JME juvenile myoclonic epilepsy (JME) since I was 13 years old, which caused me to lose consciousness and control of my bladder...
Monday, October 31, 2022
Sharing My Journey as an Epilepsy Lifestyle Advocate
Four years ago, my life changed forever. I was working as an emergency room nurse during a night shift when I suddenly felt a little lightheaded and...