Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Tuesday, December 19, 2023
Matthew's Journey With Dravet Syndrome
Matthew was diagnosed with epilepsy at 7 months old. We were convinced it was a one-time seizure. His siblings witnessed it and said he looked like a...
Wednesday, December 13, 2023
Accepting the "New" Me
I was diagnosed with focal onset and generalized epilepsy with uncontrolled seizures in July of 2023 after having a seizure at work. The subsequent...
Thursday, November 02, 2023
My Journey With Epilepsy and Pregnancy
I was diagnosed with atypical absence seizures as a child. I was having hundreds per day and not knowing. To my parents and teachers, it could be...
Tuesday, October 31, 2023
Sharing Our Stories to Create Awareness
I was diagnosed with epilepsy as an adult. My wife and I were driving home from Las Vegas, and apparently, I had experienced a seizure while in the...
How I Found Hope on My Epilepsy Journey
I was three when I first had a tonic-clonic seizure. I can't imagine the thoughts that went through my mother's head. She is the definition of a true...
Wednesday, September 27, 2023
Aiming To Overcome Through Shared Experiences
My name is Anusha Merchant. I am 10 years old and was diagnosed with absence seizures when I was 7. I was pretty excited when my first EEG occurred...
Thursday, September 21, 2023
You Are Not Alone on Your Journey
A brain hemorrhage at six weeks of age caused me to have seizures as a child. I was on an anti-seizure medication until I hit adolescence. When I was...
Wednesday, September 13, 2023
Making Connections That Count
I started taking mixed martial arts (MMA) classes at the end of May in 2023, and during class, my coach noticed I was having "staring spells" during...
Tuesday, August 29, 2023
How I Became A Voice for the Epilepsy Community
I was diagnosed with epilepsy in 2008 when I was nine. Having epilepsy was extremely rough in the beginning. All of the seizures I had growing up were...
Thursday, August 17, 2023
How I Live With Epilepsy and Without Limitations
On a beautiful summer day at the age of 23, I visited my first neurologist. His people skills could have been better, but he was my ticket to figuring...