Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Thursday, May 23, 2024
Sharing Matthew’s Epilepsy Journey
My journey with epilepsy began in May of 2020. My son, Matthew, who was three years old at the time, was diagnosed with epilepsy at the height of the...
Monday, April 15, 2024
Advocating for Healthy Living With Epilepsy
My epilepsy journey began as a teenager when I had very vague symptoms, including feeling very tired and occasional lightheadedness. It was having a...
Friday, February 23, 2024
Sharing My Journey of Hope
I had my first seizure in 2022. I was eight months pregnant. I had never had any symptoms before, and I had no warning signs. I was teaching in my 2nd...
Friday, February 02, 2024
Overcoming the Challenges of Living With Seizures
I was diagnosed with epilepsy at the age of 12. My first seizure occurred during our family vacation while I was wading in the waves at the beach. My...
Wednesday, January 24, 2024
Overcoming Challenges To Make a Difference
My name is Sophia, and I am 20 years old. I have lived with epilepsy for 13 years, since I was diagnosed at 7 years old. My epilepsy is caused by a...
Wednesday, December 13, 2023
Accepting the "New" Me
I was diagnosed with focal onset and generalized epilepsy with uncontrolled seizures in July of 2023 after having a seizure at work. The subsequent...
How I Found Hope on My Epilepsy Journey
I was three when I first had a tonic-clonic seizure. I can't imagine the thoughts that went through my mother's head. She is the definition of a true...
Thursday, September 21, 2023
You Are Not Alone on Your Journey
A brain hemorrhage at six weeks of age caused me to have seizures as a child. I was on an anti-seizure medication until I hit adolescence. When I was...
Thursday, August 17, 2023
How I Live With Epilepsy and Without Limitations
On a beautiful summer day at the age of 23, I visited my first neurologist. His people skills could have been better, but he was my ticket to figuring...
My Life With Seizures
I started having focal onset aware seizures in childhood. The feeling was similar to when your stomach flips on a roller coaster but rushed up to my...