Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Thursday, September 21, 2023
You Are Not Alone on Your Journey
A brain hemorrhage at six weeks of age caused me to have seizures as a child. I was on an anti-seizure medication until I hit adolescence. When I was...
Wednesday, September 13, 2023
Making Connections That Count
I started taking mixed martial arts (MMA) classes at the end of May in 2023, and during class, my coach noticed I was having "staring spells" during...
Thursday, September 07, 2023
Not All Seizures Are the Same
I was born a normal baby boy in Maracaibo, Venezuela, in 1977. Things were simple, and I had no medical problems for the first few years. Then...
Tuesday, August 29, 2023
How I Became A Voice for the Epilepsy Community
I was diagnosed with epilepsy in 2008 when I was nine. Having epilepsy was extremely rough in the beginning. All of the seizures I had growing up were...
Thursday, August 24, 2023
Sharing My Epilepsy Journey to Inspire Others
I grew up with epilepsy, having seizures weekly and sometimes more than one seizure in a day. Anti-seizure medication didn't control my seizures. I...
Thursday, August 17, 2023
How I Live With Epilepsy and Without Limitations
On a beautiful summer day at the age of 23, I visited my first neurologist. His people skills could have been better, but he was my ticket to figuring...
Wednesday, August 09, 2023
Inspiring Others Through Sharing My Story
I have had epilepsy since birth but did not develop tonic-clonic seizures until I was 18. At age 20, I had a seizure that lasted for 20 minutes, and...
Wednesday, August 02, 2023
Stronger Than Any Obstacles
When I was a kid, my family told me I had a seizure while playing. I had a second seizure in seventh grade, even though my medical tests showed...
One Day at A Time With Epilepsy
After years of fearing what others would think of me, I am sharing my story. I was 18 when I had my first seizure. It was an absence seizure. When I...
My Life With Seizures
I started having focal onset aware seizures in childhood. The feeling was similar to when your stomach flips on a roller coaster but rushed up to my...