Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Wednesday, January 03, 2024
Finding Clarity Through My Epilepsy Diagnosis
I was having seizures for approximately 10 years before I was diagnosed with epilepsy. It all began when I was in third grade. My mom noticed that I...
Tuesday, December 19, 2023
Matthew's Journey With Dravet Syndrome
Matthew was diagnosed with epilepsy at 7 months old. We were convinced it was a one-time seizure. His siblings witnessed it and said he looked like a...
Monday, December 18, 2023
Pursuing My Passion Despite Epilepsy
I was diagnosed with epilepsy when I was 2 years old. It was a completely unexpected diagnosis. My family never saw it coming. They thought I was...
Wednesday, December 13, 2023
Accepting the "New" Me
I was diagnosed with focal onset and generalized epilepsy with uncontrolled seizures in July of 2023 after having a seizure at work. The subsequent...
Monday, December 11, 2023
Don't Let Epilepsy Define You
In October of 2021, I was 14 years old and a freshman in high school eating lunch when my first tonic-clonic seizure occurred. I had my second tonic...
Tuesday, December 05, 2023
Building a Supportive Community on My Journey
In 2020, I experienced a terrifying seizure during the height of the COVID-19 pandemic. Unfortunately, I had another one in 2023 that was accompanied...
Thursday, November 30, 2023
Educating Others About Epilepsy
I was 22 years old when I was diagnosed with epilepsy. In January 2022, I woke up with what felt like a severely swollen tongue, blood on the pillow...
Tuesday, November 28, 2023
I Am 1 in 26
In 1970, I became one of the 26 individuals who developed epilepsy in their lifetime. At the time, my diagnosis was verbal auditory agnosia, which...
Tuesday, November 21, 2023
Epilepsy Awareness Is Critical
At 51, I was diagnosed with epilepsy. My first seizure caught me totally off guard. My day started off normally. Nothing was unusual. I was working...
Tuesday, November 14, 2023
Advocating for Myself and Others With Epilepsy
In the fall of 2017, I did not know much about epilepsy . Sure, I had heard about it, but I had no idea what triggers were or that epilepsy affected...