Anybody else with TLE suffer with phobias?

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Hi there I’ve had TLE since I was around 5, started with grand mal, now I always have partial seizures. Not had any for about 10 years but just started having them again. I have also suffered with emetophobia all my life. Which Is a fear of vomiting. It has ruined my life thus far. I’ve been researching a link between the amygdala(which is part of the temporal lobe) and phobias. Phobias arise in this part of the brain. So I’m wondering if this is the cause of my phobia, the fact that I have TLE.

Comments

Hi, Thank you for posting, we

Submitted by Anonymous on Thu, 2020-01-02 - 09:44

Hi, Thank you for posting, we understand this must be very frustrating and upsetting to experience.We cannot determine if you’re TLE is related to your phobia or not. It is common for those living with epilepsy to experience feelings of anxiety. https://www.epilepsy.com/learn/challenges-epilepsy It’s important that you’re addressing this challenge and any additional concerns you may have with your healthcare team, as well as changes in seizure frequency, types, side effects, symptoms, moods or behaviors with your healthcare team. It is also important to recognize that epilepsy is more than just seizures, your overall well-being and emotional health is just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health The Wellness Institute: epilepsy.com/wellness ,has many helpful and easy-to-use tips &resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family. For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-toolsAdditionally, you may want to consider keeping a journal or a diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for tracking seizures, setting reminders, recording medical history, managing medication & other therapies, recognizing triggers, side effects, behaviors, moods and other health events that may affect wellness,which can be shared with your healthcare team. Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions,share experiences, find & give support to each other, by contacting your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community. Or contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help,hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

Hi, Thank you for posting, we understand this must be very frustrating and upsetting to experience.We cannot determine if you’re TLE is related to your phobia or not. It is common for those living with epilepsy to experience feelings of anxiety. https://www.epilepsy.com/learn/challenges-epilepsy   It’s important that you’re addressing this challenge and any additional concerns you may have with your healthcare team, as well as changes in seizure frequency, types, side effects, symptoms, moods or behaviors with your healthcare team. It is also important to recognize that epilepsy is more than just seizures, your overall well-being and emotional health is just as important:  https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health   The Wellness Institute:  epilepsy.com/wellness   ,has many helpful and easy-to-use tips &resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family.  For practical & effective strategies to enhance your well-being, learn more here:  https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-toolsAdditionally, you may want to consider keeping a journal or a diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for tracking seizures, setting reminders, recording medical history, managing medication & other therapies, recognizing triggers, side effects, behaviors, moods and other health events that may affect wellness,which can be shared with your healthcare team. Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions,share experiences, find & give support to each other, by contacting your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates  to find support groups, events, and programs in your community. Or contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help,hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

Hi, Thank you for posting, we understand this must be very frustrating and upsetting to experience.We cannot determine if you’re TLE is related to your phobia or not. It is common for those living with epilepsy to experience feelings of anxiety. https://www.epilepsy.com/learn/challenges-epilepsy It’s important that you’re addressing this challenge and any additional concerns you may have with your healthcare team, as well as changes in seizure frequency, types, side effects, symptoms, moods or behaviors with your healthcare team. It is also important to recognize that epilepsy is more than just seizures, your overall well-being and emotional health is just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health The Wellness Institute: epilepsy.com/wellness ,has many helpful and easy-to-use tips &resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family. For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-toolsAdditionally, you may want to consider keeping a journal or a diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for tracking seizures, setting reminders, recording medical history, managing medication & other therapies, recognizing triggers, side effects, behaviors, moods and other health events that may affect wellness,which can be shared with your healthcare team. Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions,share experiences, find & give support to each other, by contacting your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community. Or contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help,hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

It also makes it very hard

Submitted by Montana H on Sun, 2020-01-05 - 15:04

It also makes it very hard for me to try new foods, or go out with friends and family because I’m worried that the food will trigger these horrible feelings. It’s prevented me from truly living so I’ve been focused on seeking discomfort until the uncomfortable becomes comfortable.

Maybe not a phobia but

Submitted by Misjoey101 on Fri, 2020-01-24 - 17:33

Maybe not a phobia but EXTREME social anxiety. Multiple anxiety attacks in public, around sibling's friends, for presentations. If I step out of my comfort zone, the racing heart, tears and running is coming.