Women with epilepsy

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I never had a seizure in my life until two years after my partial hysterectomy and now I have them every 6-12 weeks. I used to only have them in my sleep but now I have them also while awake for several days until they taper off and stop. It takes about two weeks to fully recover and then I’m fine until it starts all over the next episode. All work up has been negative and no cause or health issue has been a suspicious culprit so there’s no idea how to treat them. I tried seizure meds and combinations of meds with no improvement. I still have hot flashes and mood swings so I guess I’m still going through menopause. My questions are 1. Is it due to the partial hysterectomy? 2. Will it stop later in life perhaps when my one ovary dies/quits functioning? 3. Will I have seizures for the rest of my life?

Comments

Hi Pepe's Mama, Thanks so

Submitted by Anonymous on Mon, 2019-06-10 - 11:18

Hi Pepe's Mama, Thanks so much for posting. It's important that you to follow-up with your healthcare team to express your concerns and to discuss any changes in side seizure types, behaviors, symptoms, or side effects. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf . Please visit, https://www.epilepsy.com/sites/core/files/atoms/files/discussion_checklist.pdf ,for additional information and questions to review with your doctor. Learn more about epilepsy & women here, https://www.epilepsy.com/living-epilepsy/women , https://www.epilepsy.com/living-epilepsy/women/menopause-and-epilepsy & https://www.epilepsy.com/living-epilepsy/women/all-women/hormones-and-epilepsy You may want to consider with your doctor having a device, that can help track seizures, by visiting https://www.dannydid.org/ , and by keeping a seizure diary, https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryThese tools may be helpful in identifying & tracking seizures, other symptoms, managing medication & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with your healthcare team. Learn more about seizure alert devices & safety here, https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe/safety-while-sleeping For help finding a doctor specializing in epilepsy please visit, www.epilepsy.com/living-epilepsy/find-epilepsy-specialist , or by visiting the National Association of Epilepsy Centers at, www.naec-epilepsy.org & https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist/find-epilepsy-center For additional questions, please email, contactus@efa.org , or call our 24/7 Helpline at, 1-800-332-1000, where a trained information specialist can assist in connecting you to resources, provide referrals and additional support. https://www.epilepsy.com/living-epilepsy/247-helpline

Hi Pepe's Mama, Thanks so much for posting. It's important that you to follow-up with your healthcare team to express your concerns and to discuss any changes in side seizure types, behaviors, symptoms, or side effects. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf .                Please visit, https://www.epilepsy.com/sites/core/files/atoms/files/discussion_checklist.pdf   ,for additional information and questions to review with your doctor.   Learn more about epilepsy & women here,  https://www.epilepsy.com/living-epilepsy/women   , https://www.epilepsy.com/living-epilepsy/women/menopause-and-epilepsy    & https://www.epilepsy.com/living-epilepsy/women/all-women/hormones-and-epilepsy You  may want to consider with your doctor having a device,  that can help track seizures, by visiting https://www.dannydid.org/ , and by keeping a seizure diary,    https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryThese tools may be helpful in identifying & tracking seizures, other symptoms, managing medication & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with your healthcare team. Learn more about seizure alert devices & safety here,   https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf  https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe/safety-while-sleeping For help finding a doctor specializing in epilepsy please visit,  www.epilepsy.com/living-epilepsy/find-epilepsy-specialist  , or by visiting the National Association of Epilepsy Centers at,   www.naec-epilepsy.org   &    https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist/find-epilepsy-center   For additional questions, please email, contactus@efa.org , or call our 24/7 Helpline at,  1-800-332-1000,  where a trained information specialist can assist in connecting you to resources, provide referrals and additional support. https://www.epilepsy.com/living-epilepsy/247-helpline

Hi Pepe's Mama, Thanks so much for posting. It's important that you to follow-up with your healthcare team to express your concerns and to discuss any changes in side seizure types, behaviors, symptoms, or side effects. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf . Please visit, https://www.epilepsy.com/sites/core/files/atoms/files/discussion_checklist.pdf ,for additional information and questions to review with your doctor. Learn more about epilepsy & women here, https://www.epilepsy.com/living-epilepsy/women , https://www.epilepsy.com/living-epilepsy/women/menopause-and-epilepsy & https://www.epilepsy.com/living-epilepsy/women/all-women/hormones-and-epilepsy You may want to consider with your doctor having a device, that can help track seizures, by visiting https://www.dannydid.org/ , and by keeping a seizure diary, https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryThese tools may be helpful in identifying & tracking seizures, other symptoms, managing medication & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with your healthcare team. Learn more about seizure alert devices & safety here, https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe/safety-while-sleeping For help finding a doctor specializing in epilepsy please visit, www.epilepsy.com/living-epilepsy/find-epilepsy-specialist , or by visiting the National Association of Epilepsy Centers at, www.naec-epilepsy.org & https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist/find-epilepsy-center For additional questions, please email, contactus@efa.org , or call our 24/7 Helpline at, 1-800-332-1000, where a trained information specialist can assist in connecting you to resources, provide referrals and additional support. https://www.epilepsy.com/living-epilepsy/247-helpline

like the previous post stated

Submitted by Anjanna90 on Sat, 2019-06-15 - 12:23

like the previous post stated keep a log of your seizure ..my seizures for instance happen around when my hormones are higher ...i have an app that keeps track of both and they coinside with both . To answer you questions No one can answer that..the body is a mystery and hopefully you won't have them..just educate your self as much as possible on they type of seizures you have ..and regiment your times on when you take your meds . And plenty of fluids (water especially) is your friend.