Perseveration and Epilepsy

My daughter has landau-kefler epilepsy. For 16 years she has been this sweet, loving and caring child...for still is for the most part.

Back in december she asked to play this video game called "Five Nights at Freddy's". It is horror game and in my opinion is extremely dumb and lame. I checked it out and decided (along with my wife) that it would be ok for her to play. Within a week her personality changed and she became darker and more intense. We took the game away from her and let's just say that our lives have been living hell ever since. 

She admitted to us 100's of times that she doesn't like the game but only the "cute" characters and that they are just "misunderstood" and not bad. There has been many many yelling and screaming and tears from her over the months. So, back in June we decided "THis isn't the hill my wife and I want to die on" so we gave her back the game. Things seemed to be harmonious and unicorns and rainbows again.........for a week...then it was "I want game 2 and 3". We remind her that isn't what we all agreed too and she starts getting angry saying "Well, that isn't what I meant...I just said that because I wanted the game back". When we show her the video we recorded of her stating the fact that she only wanted the first one.....she gets very mad and starts crying and getting angry.

In the last 3 months we have had to call 911 two times because she was out of control and threathening to hurt my wife and myself (she is all of 100 pounds and I am 6'2" - 270...she isn't going to hurt me), but she has threatened my wife a few times. We removed knives, scissors etc.

After she comes down from her anger, she is this sweet child that is remorseful and cries and says she doesn't know why she is like this. There is no talking to her while she is like this (anger), she raises her voice and yells, yet we aren't allowed to do the same back. The other day we was yelling at us to get mad at her and yell at her so she could justify her anger.....we didn't. 

We have had her on a a bevy of medicines..amplify, nudextra (sp), vallium, omfi (sp) and recently have tried CBD Oil (Canabis oil...NO THC). That seems to have worked a little but still early to know for sure. We have had blood work done, genetic testing (she was adopted at birth).

She was at Ronald McDonald camp last week and absolutely loved it..she had NO electronics, no internet, no nothing other than camping....she gets home, and immediately wants her stuff...and this is when all it started again.

You are probably saying "keep electronics away from her"....but in today's age, that is hard and we do out best by limiting her time with them. With my work, I need to check emails and do work from home...so, I can't lead by example so to speak. 

I have dealt with mental illness in the past (ex-wife is bi-polar) and my oldest son was hospitalized 8 years ago for what was diagnosed as "IEAD" (Involuntary Explosive Anger Disorder). He has been fine since that time. 

Epilepsy is new to me....my wife and I have only been married 18 months and I have taken on the role of father (my wife became widowed when the daughter was 2 years old).

I love this girl so much...she is such a joy to be around when she isn't obessing over this video game...we can have amazing conversations in those times. She only sees the best in people and no one is ever bad...only "misunderstood" (her words). 

The wife and I don't know what we will wake up to from day to day.

I post this not so much for answers, but just to get it out in hopes that someone can lend a kind word or possibly a similar incident....just need to know that we aren't alone.

Thanks for your time!

Blessings!

Keith