Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

PLS help im new to this. my 3 month old baby was recently diaagnosed with generalized epilepsy,

Sat, 07/26/2014 - 02:14

He started having seizure like episodes when he was 1 month old. I brought him to his pedia but they only advised me that he'll grow out of it.. they said not to worry so i didnt worry much. It was like he's afraid as if he's gonna fall,and then his arms and legs will twitch (though it wont go stiff) together with the eye blinking and lips twitching and then a little after he acts as if his gonna poop but nothing then he would go back to his normal self. At 2 months old he still have this so i really am worried so i brought him back to his pedia but they though it was just a reflex. I know its not. so i have him checked at children's hospital here @ the Phils. And he was admitted right away. They said it was seizures and they have him diagnosed with EEG and cranial ultrasound. The result in cranial utrasound is normal, no bleeding or whatver, but the EEG on the other hnd was never explained briefly to me. (ill be asking more at our next appt) 

 

His seizures never happened again since he was discharged. but the spasm are still there.i only knew he was diagnosed with epilepsy bec it was written at his discharge papers. So i really do need help from you guys bec i aint getting much. 

Comments

I read you will be asking

Submitted by just_joe on Sat, 2014-07-26 - 15:16
I read you will be asking more in your next appt.  Did they prescribe a medication? If they didn't then why a diagnosis without a RX which would stop the seizures?  If the diagnosis was made was it a pediatric specialist in epilepsy?  Like Sharon said sometimes diagnoses are wrong unless it ocmes fron a epilepologist. Oh and they would generally discuss the EEG and tell you what and where and everything else they got their information. They would also prescribe a medication and tell you how to use it and would follow that up with another appt, to see if the medication is working and if the dosage needs to be raised or lowered. The EEG is a brain wave test which shows where the electrical impulses come from. If they come back normal it means they didn't find anything different then from anybody elses. If the EEG comes back with abnormalities they see where in the brain those abnormalities came from. Abnormalities to a neurologist  is seizure activity. The specialist would look closer are other tests to see if anything can be found in that area of the brain. I hope this helps and you get the asisstance your child needs and he gets seizure free

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.