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spouses
Wed, 01/23/2008 - 19:50Are there any spouses out there with their love ones having grand mal seizures. My husband had a TBI four years ago, and had his first grand mal one year after. He has only had four so far, and is on Depakote. He had two grand mal s's last Saturday morning.
This seizures are very frightening for me to watch, so I now sleep in other room. I am afraid that one time, something bad will happen and I won't be there to help. But it is so stressful. I hate this. I guess since his accident, (he fell off a roof at ten feet) and the seizures began, does that considered epilepsy. His doctor keeps just uping his meds after his seizures. Does that sound right. Am thinking about finding a new doctor.
Comments
spouses
Submitted by Sue B. on Thu, 2008-01-24 - 21:54
I do log everything that has happened. I have to sleep in another room because he moves around a lot and I work full time. I need that rest to function the next day. I feel like I have turned into a caregiver and not a wife. I am on pins and needles, especially after a seizure. It takes awhile before I get out of "panic mode".
In my state, Michigan, you have to be seizure free before you can drive again. This is going to drive him buggy. Like I said he has a TBI, and has done wonderfully.
How do you handle all the stress with all of this. Did you hubby have an accident, and does he have s's all the time. These seizures (s's) are frigtening. How do you handle it? My hubby has had them only in his sleep, Thank God. Blessings.
I do log everything that has happened. I have to sleep in another room because he moves around a lot and I work full time. I need that rest to function the next day. I feel like I have turned into a caregiver and not a wife. I am on pins and needles, especially after a seizure. It takes awhile before I get out of "panic mode".
In my state, Michigan, you have to be seizure free before you can drive again. This is going to drive him buggy. Like I said he has a TBI, and has done wonderfully.
How do you handle all the stress with all of this. Did you hubby have an accident, and does he have s's all the time. These seizures (s's) are frigtening. How do you handle it? My hubby has had them only in his sleep, Thank God. Blessings.
Hi Sue. His seizures are
Submitted by Anie on Fri, 2008-01-25 - 08:52
Hi Sue.
His seizures are not too bad. He used to have every month, then it was every 3 month and then every 6 month but then he started to have bad side effects from his drugs so we had to change his medicine. He has now every 3 month and are not very severe. They are not grand mal.
I can understand that it is very stressful for you.My husband had lost his driving licence 6 years ago (we've been married nearly 5y) and here also you must be fit free for at least 1year to be able to drive again. It's difficult for them not being able to drive. It's like they've lost their freedom. In my case it's not a big problem because we work together and im with him 24/7.
Yes it worries me a lot when he has a fit but in general they are controled. I do get stressed if he doesn't take his drugs on time. It is very important that they take the aed's on time. The tiredness, lack of sleep and stess can also induce to have seizures.
Even when he has his seizures in public i always stay calm and never bother about his behaviour whilst having a fit nor about what people around us think. He feels very embaraced when he has a fit in public but i always tell him that it's something that he can't control and he should not feel bad about it.
Comunication it's very important.
It's good in a way that your hubby only have seizures when sleeping.
Is it what they call nocturial seizures?? If he is sleeping on his own then make sure there is nothing around him that might hurt him...
Do you have any support group there? Maybe you could talk with other ladies and share views.
Anie :)
Smile :)
Hi Sue.
His seizures are not too bad. He used to have every month, then it was every 3 month and then every 6 month but then he started to have bad side effects from his drugs so we had to change his medicine. He has now every 3 month and are not very severe. They are not grand mal.
I can understand that it is very stressful for you.My husband had lost his driving licence 6 years ago (we've been married nearly 5y) and here also you must be fit free for at least 1year to be able to drive again. It's difficult for them not being able to drive. It's like they've lost their freedom. In my case it's not a big problem because we work together and im with him 24/7.
Yes it worries me a lot when he has a fit but in general they are controled. I do get stressed if he doesn't take his drugs on time. It is very important that they take the aed's on time. The tiredness, lack of sleep and stess can also induce to have seizures.
Even when he has his seizures in public i always stay calm and never bother about his behaviour whilst having a fit nor about what people around us think. He feels very embaraced when he has a fit in public but i always tell him that it's something that he can't control and he should not feel bad about it.
Comunication it's very important.
It's good in a way that your hubby only have seizures when sleeping.
Is it what they call nocturial seizures?? If he is sleeping on his own then make sure there is nothing around him that might hurt him...
Do you have any support group there? Maybe you could talk with other ladies and share views.
Anie :)
Smile :)
Hi Sue. It is very
Submitted by Anie on Thu, 2008-01-24 - 13:17
Hi Sue.
It is very difficult to see our loved ones having a seizure. My dh has epilepsy too but his are not too bad,touch-wood.
It is important that you stay strong and don't panic or stress about this. As you said what if something happens and you arre not there???
Learn the first aid. Make a note of his seizures:when does it happen, how long does it lasts, do you notice any improvement once the dosages is increased?
If you don't feel ok with the doctor then maybe you should change.
My dh (dear husband) first doctor was not good and didn't help much so we changed and this new one if much better!
Be strong and remember that he needs you most.
All the best for both of you.
Smile :)
Hi Sue.
It is very difficult to see our loved ones having a seizure. My dh has epilepsy too but his are not too bad,touch-wood.
It is important that you stay strong and don't panic or stress about this. As you said what if something happens and you arre not there???
Learn the first aid. Make a note of his seizures:when does it happen, how long does it lasts, do you notice any improvement once the dosages is increased?
If you don't feel ok with the doctor then maybe you should change.
My dh (dear husband) first doctor was not good and didn't help much so we changed and this new one if much better!
Be strong and remember that he needs you most.
All the best for both of you.
Smile :)