This is my story

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My name is Eryn, In October of 04 I switched my regular doctor to a new doctor for the reason of chronic headaches. First visit with new doctor and he asks me what the lumps on my neck are. I explain they've been there as long as I can remember and doctors had always said they were just enlarged glands. New doctor doesnt think so. So december 04 I go in and have largest lump removed. Lump is sent to vancouver for tests, it will be a while for results. January 05 comes, normal flu/cold going around and I spend a day in bed. Well, I wake up and my daughter, ex-hubby and some ambulance people are all looking down on me. Seems I had a seizure while sleeping, my 8 yr old daughter heard me and called her dad. It scared my poor girl. Ok, I was sent home. March 05 comes the result of my lump, I have thyroid cancer, always have, nobody ever knew. OK, schedual surgery for Oct. May comes along and I wake up again with my daughter, her friend and the ambulance attendants standing over me. Another seizure. Sent home again. June. Same thing happens again, early morning, to hospital, sent home. Hmm? 3 days later. My poor daughter is freaked and my tounge is chewed right up. But sent home again. So this time I stay the night at my parents, Im to scared to go home. And, yes, another one. But this time its my dad standing over me! So back to the hospital and finally someone thinks its time for some meds. So I start on 3 dilantin. OK great. August comes and another. So Im up to 4 dilantin. In the meantime I have surgery and get my entire thyroid removed plus a whack of noduales. Then radiation. July 06 Im doing great. No more cancer, no more seizures. It must have just been a fluke thing. Until yesterday when I was woken up again by the neighbor and my daughter. Another one. So now Im kinda back where I started, except no more cancer! The question I have, Finally(!) is, could there be a connection? I had those lumps in my neck all my life and just after they were removed, I began having seizures. Seems weird to me, but I dont know much about the inside of my own head and neck. Thank you all for hanging around so long, Im hoping you understand its hard to find someone who understands when I start rambling!

Comments

Re: This is my story

Submitted by kcox1228 on Mon, 2006-07-10 - 19:13

How scary! I don't honestly know what could be causing the continuing seizures but I know what it feels like to wake up in an ambulance and not know what happened or why you are there... hang in there and let us know what the doctors say... hopefully somene on here knows something about your experience! Kristin

Re: This is my story

Submitted by Anonymous on Mon, 2006-07-10 - 20:31

There are lots of different causes of seizures. Some medical problems can affect or trigger seizures. Thyroid problems can be linked to seizures as both are affected by hormones from the brain.

What the connections are, what to do etc needs to be sorted out by doctors involved. Endocrinologists who are familiar with neurological problems such as seizures can help, in addition to neurologists who specialize in seizures!

Hope this helps. Best wishes, Epilepsy.com Resource Specialist

What the connections are, what to do etc needs to be sorted out by doctors involved. Endocrinologists who are familiar with neurological problems such as seizures can help, in addition to neurologists who specialize in seizures!

Hope this helps. Best wishes, Epilepsy.com Resource Specialist

Re: This is my story

Submitted by yikes on Wed, 2011-04-13 - 13:46

I see this is written in 06a and now it is 11

I have epilepsy, I was on 1500,mg of depokote at night and 1000 in the am. pluss kepra and lamactal anyway

I had no idea I had thyroid cancer. They found it in the summer and did that litte biopsy thing. Then I had to go on this weird diet before I got the radiation pill thing done.

Anyway with the diet my matabalis got wacky. I told every one I felt like I was having a seizure. My sister tried to convinse me it was my body trying to get used to being with out the thyroid.

Finally I coud not take it any more and called the dr on call . They sugested the metablalism. My debokote level was skyu hi. So they kept me in the hospital for the radiaion. That was in November. I spent so much time in the hospital in November. Anyway they lowered my depokote er to 750 am and 750 pm. Yes like halve the medicine... Everyone said I would take my normal dose befor I got in the hospital.

My neurologist checked my level and she said I was doing fine. at the low amount of depokote er. I have had a few drop seizures since November.

Before November I was completly controlled since my high school years. I would only have drop seizures around a certain time of the month. And myclonic jerks. Now after all thease years with no thyroid I have droped a couple times all of a sudden,

Also every time I said depokote I was writting the generic kind Depokote ER 500 mg pill

So yes I have epilepsy then found thyroid cancer and I am 43 sorry for the mumble jumble.