Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
New to board
Mon, 05/30/2005 - 14:27Hi. I am new to this board. Over the 40 yrs of my life, I have been on Phenobarbital and mysolin when I was a child, Dilantin and mysolin when I was a teenager.
I was then put on Tegretol...which seemed to work in my early twenties. Then the dosage got to be 1.5 400mg tablets, twice a day.
I have now been using novoclobazam with that also (10mg tablets, 2 at night, one in the day).
My partial seizures have almost stopped, but I am really doped up. I drink a lot of coffee to try to counter the effects. Do I have any other alternatives?
I always had partial seizures, or auras as they would call them. They ran all types of test during my childhood..types of food, sleep deprivation...but nothing consistently triggered them.
I have a job, and am married. Does anyone know if 600mg doses of tegretol is too high.
Michael
Comments
RE: RE: New to board
Submitted by sarajane on Tue, 2005-05-31 - 16:54
RE: RE: RE: New to board
Submitted by grez-monkey on Tue, 2005-05-31 - 17:19
Welcome to the e.com board too sarajane,
Just a guess and idea for you. Since both of your toenails have come back and with your doctor's words, it may have been a fungus. Stay on your toe [lol] with this matter and hopeful the problem won't come back.
Bruce J
Welcome to the e.com board too sarajane,
Just a guess and idea for you. Since both of your toenails have come back and with your doctor's words, it may have been a fungus. Stay on your toe [lol] with this matter and hopeful the problem won't come back.
Bruce J
RE: New to board
Submitted by grez-monkey on Mon, 2005-05-30 - 14:27
Welcome to the group Michael. First thing you can look into is about the doses of tegretol. On one website page is the dosing and titration of tegretol. A portion of it lists that, 'The average maintenance dose as monotherapy for adults is 600-1200 mg per day.' [www.epilepsy.com/medications/p_tegretol_dosage.html] There is something else on this same webpage that you might want to bring to your doctor's attention, and the is "The extended-release forms, Tegretol-XR and Carbatrol, are often preferable for patients who have trouble with compliance and for those whose blood levels fluctuate widely throughout the day.".
There are alot more detailed information pertaining to tegretol, which starts at the introduction website. It is www.epilepsy.com/medications/i_tegretol_intro.html
I've had e for 18 years now and narrowed down that they nearly always occur roughly 6 hours after I've eaten a meal, or snacks. Because of it I have it set in my mind that my seizures [currently just simple partials] are being triggered by my diet and digestive tract. Overall, abdominal epilepsy. I found more information online and have worked with a more natural/organic diet form with positive results of lowered frequency and strength of the sps, plus a lowered bad cholesterol level. Caffine has also given me negative effects and results, so I lowered my intake of it.
Bruce
Welcome to the group Michael. First thing you can look into is about the doses of tegretol. On one website page is the dosing and titration of tegretol. A portion of it lists that, 'The average maintenance dose as monotherapy for adults is 600-1200 mg per day.' [www.epilepsy.com/medications/p_tegretol_dosage.html] There is something else on this same webpage that you might want to bring to your doctor's attention, and the is "The extended-release forms, Tegretol-XR and Carbatrol, are often preferable for patients who have trouble with compliance and for those whose blood levels fluctuate widely throughout the day.".
There are alot more detailed information pertaining to tegretol, which starts at the introduction website. It is www.epilepsy.com/medications/i_tegretol_intro.html
I've had e for 18 years now and narrowed down that they nearly always occur roughly 6 hours after I've eaten a meal, or snacks. Because of it I have it set in my mind that my seizures [currently just simple partials] are being triggered by my diet and digestive tract. Overall, abdominal epilepsy. I found more information online and have worked with a more natural/organic diet form with positive results of lowered frequency and strength of the sps, plus a lowered bad cholesterol level. Caffine has also given me negative effects and results, so I lowered my intake of it.
Bruce