Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.


Renaldo's eJourney shared by his wife Ellen Mason
Partner of a Person with Epilepsy
Ellen is sharing her husband’s story to encourage other people to learn about epilepsy and talk to their healthcare provider about SUDEP.
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Chris' eJourney of SUDEP shared by Amy Dillard
Parent of a Child with Epilepsy
Amy Dillard never thought SUDEP would happen to her family. She is sharing her son Chris’ story to help others learn about seizures and epilepsy.
Debra Shirt with Joshua and family
Parent of a Child with Epilepsy
Debra Shirt is remembering her son Joshua by sharing her family’s journey and encouraging people to learn about sudden unexpected death in epilepsy.
Jennifer Sime and family, including her son Brendan
Parent of a Child with Epilepsy
Read about how Jennifer Sime is honoring the life of her son, Brendan, by raising SUDEP awareness.
Maggie Fitzsimmons' eJourney
Person with Epilepsy
As a college student, Maggie is sharing her story to inspire others to learn about epilepsy and get involved.
Lindsay family portrait and son with dravet syndrome
Parent of a Child with Epilepsy
Lindsay is a mother of a child with Dravet Syndrome. Learn about how her family navigates treatment for this rare form of childhood epilepsy.
Partner of a Person with Epilepsy
Yasa shares her first experience witnessing her partner Yuri having a seizure. Read this powerful, raw story from a partner and caregiver.
Caroline Rowe OGTW.png
Parent of a Child with Epilepsy
Meet Caroline, teen advocate and person living with juvenile myoclonic epilepsy.
Michelle_Mama Bear for Rare.png
Parent of a Child with Epilepsy
Meet Michelle, mother of a child living with a rare diagnosis called Jordan's Syndrome.

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

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