Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.


Bob is sharing his journey with epilepsy and how it makes his life unique
Person with Epilepsy
Prior to seizures, Bob didn’t have any health problems. He is sharing his 32-year journey with epilepsy and how it has made his life unique.
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Person with Epilepsy
Alexa is sharing her e-Journey to help raise awareness about epilepsy in her local community.
Christina is sharing her eJourney about multiple seizures and treatment-resistant epilepsy
Person with Epilepsy
Christina’s epilepsy journey has been difficult, but she has persevered. She is encouraging other people to work with an epileptologist and never give up hope.
Michelle is sharing her story about losing her son Jessee due to Sudden Unexpected Death in Epilepsy
Parent of a Child with Epilepsy
Michelle was devastated when she lost her son Jessee due to Sudden Unexpected Death in Epilepsy (SUDEP). She hopes one day a cure can be found to prevent future loss.
David Isenhour is sharing his daughter Alison's epilepsy story and what has helped their family stick together through challenges
Parent of a Child with Epilepsy
With a challenge like epilepsy, David knows we all need to stick together. He’s sharing his daughter Alison’s eJourney to highlight challenges and successes.
Thandi is sharing her daughter Leia's ongoing experience with epilepsy and seizures
Parent of a Child with Epilepsy
Thandi is sharing about her daughter Leia’s ongoing battle with seizures. Epilepsy has changed her family, but Leia has the strength of a fighting warrior.
Parker is telling her story about how her epilepsy led her to make a positive impact
Person with Epilepsy
Parker shares her journey with seizures and epilepsy, including how her work as an epilepsy ambassador has added greater purpose to her life.
Jaylin shares her story about how she does not let epilepsy define her
Person with Epilepsy
Jaylin shares her story about how epilepsy does not define her and hopes to inspire others to live an active and healthy life despite their diagnosis.
Joe Rodriguez is sharing his eJourney to inspire others who live with epilepsy
Person with Epilepsy
Joe suffered from seizures since childhood, but after corrective surgery, he has been seizure free. He hopes his story inspires others.

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

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