Sharing My Story to Educate Others

Cheri is sharing her epilepsy story to help educate others
Cheri Compton
Person with Epilepsy
Monday, November 29, 2021

My son was 5 years old when he witnessed my first tonic-clonic seizure. After I came to, I heard him yelling, "Mom!" I was 28 years old at the time and finishing my bachelor’s degree in business administration. After my second tonic-clonic seizure, I was told I had epilepsy.

I was shocked, and I didn't know what to think. It was difficult to move forward, but I tried my best.

I had a resection in 2016 which stopped the seizures that left me conscious-impaired. However, the focal unaware seizures and auras continued. Then, in 2019, I had a neurostimulation procedure.

One of the most painful things I experienced was being escorted from my boys' school during parent-teacher conferences after I had a seizure. Even though the teacher knew I had epilepsy as I had previously explained how they manifested, I was told I could not see my other son's teacher that day.

Despite all the challenges I have faced, my biggest worry, however, is making sure my children have a happy life.

It can be incredibly difficult to live with epilepsy or to care for someone with epilepsy. Unfortunately, my focal unaware seizures have only worsened. My epileptologist and I continue to work together to find a solution for seizure control. In the meantime, I volunteer at my children’s school to add value to my life and to give back. Through it all, I explain my story and use it as an opportunity to educate others.

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Reviewed by: 
Sara Wyen

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The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

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