eJourney | Epilepsy Foundation

epilepsy.com

You are here

Each Journey Is Unique

As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.

SHARE YOUR STORY

Jennifer Sime_compressed.jpg

Featured

Parent of a Child with Epilepsy

Read about how Jennifer Sime is honoring the life of her son, Brendan, by raising SUDEP awareness.

Read Jennifer Sime's Story

Debra Shirt with Joshua and family

Parent of a Child with Epilepsy

Debra Shirt is remembering her son Joshua by sharing her family’s journey and encouraging people to learn about sudden unexpected death in epilepsy.

Read Debra Shirt 's Story

Maggie Fitzsimmons' eJourney

Maggie Fitzsimmons

Person with Epilepsy

As a college student, Maggie is sharing her story to inspire others to learn about epilepsy and get involved.

Read Maggie Fitzsimmons's Story

Lindsay family portrait and son with dravet syndrome

Parent of a Child with Epilepsy

Lindsay is a mother of a child with Dravet Syndrome. Learn about how her family navigates treatment for this rare form of childhood epilepsy.

Read Lindsay Marsh's Story

Partner of a Person with Epilepsy

Yasa shares her first experience witnessing her partner Yuri having a seizure. Read this powerful, raw story from a partner and caregiver.

Read Yasa Pogarch's Story

Caroline Rowe OGTW.png

Julie Rowe

Parent of a Child with Epilepsy

Meet Caroline, teen advocate and person living with juvenile myoclonic epilepsy.

Read Julie Rowe's Story

Michelle_Mama Bear for Rare.png

Michelle

Parent of a Child with Epilepsy

Meet Michelle, mother of a child living with a rare diagnosis called Jordan's Syndrome.

Read Michelle's Story

Jessica Bonney Reveley

Reveley and Bonney Families

Family Stories

The Reveley and Bonney families share their tribute to Jessica, their loved one who passed from SUDEP.

Read Reveley and Bonney Families's Story

Bri Dimit

Bri Dimit

Person with Epilepsy

From diagnosis to nine years seizure free, Bri shares her challenges and achievements.

Read Bri Dimit's Story

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

follow us

P