Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.


Jennifer Sime_compressed.jpg
Parent of a Child with Epilepsy
Read about how Jennifer Sime is honoring the life of her son, Brendan, by raising SUDEP awareness.
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Debra Shirt with Joshua and family
Parent of a Child with Epilepsy
Debra Shirt is remembering her son Joshua by sharing her family’s journey and encouraging people to learn about sudden unexpected death in epilepsy.
Maggie Fitzsimmons' eJourney
Person with Epilepsy
As a college student, Maggie is sharing her story to inspire others to learn about epilepsy and get involved.
Lindsay family portrait and son with dravet syndrome
Parent of a Child with Epilepsy
Lindsay is a mother of a child with Dravet Syndrome. Learn about how her family navigates treatment for this rare form of childhood epilepsy.
Partner of a Person with Epilepsy
Yasa shares her first experience witnessing her partner Yuri having a seizure. Read this powerful, raw story from a partner and caregiver.
Caroline Rowe OGTW.png
Parent of a Child with Epilepsy
Meet Caroline, teen advocate and person living with juvenile myoclonic epilepsy.
Michelle_Mama Bear for Rare.png
Parent of a Child with Epilepsy
Meet Michelle, mother of a child living with a rare diagnosis called Jordan's Syndrome.
Jessica Bonney Reveley
Family Stories
The Reveley and Bonney families share their tribute to Jessica, their loved one who passed from SUDEP.
Bri Dimit
Person with Epilepsy
From diagnosis to nine years seizure free, Bri shares her challenges and achievements.

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

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