Summary

The Director oversees federal and legislative and regulatory advocacy strategies, and communicates the Foundation’s public policy priorities with internal and external stakeholders, with a focus on leading federal advocacy activities. Cultivates relationships with internal and external stakeholders, including affiliates/chapters, other epilepsy organizations, voluntary health organizations; and state and federal legislative offices and agencies.

Scope of work includes content development and research in support of public policy priorities; participating in strategic partnerships in line with Foundation strategic priorities; meeting with Congressional representatives; overseeing grassroots advocacy development; interacting with internal and external stakeholders, and planning the Foundation’s signature public policy conference.

Essential Duties and Responsibilities

  • Oversees day-to-day activities in support of state and federal legislative and regulatory advocacy, with a focus on leading federal advocacy activities.
  • Develops and implements state and federal legislative and regulatory advocacy strategy with a focus on access to quality care; research and innovation; budget and appropriations for epilepsy research, programs and services; and disability and discrimination.
  • Oversees development of grassroots advocacy activities.
  • Meets with members of Congress and their staff to advocate in support of the Foundation’s public policy priorities as needed and works with lobby team to implement advocacy strategies.
  • Develops letters, testimony, regulatory comments, legislative updates, position statements, articles and op-eds, grassroots communications, and background materials for internal and external audiences
  • Collaborates with affiliates/chapters and other epilepsy organizations in support of public policy priorities.
  • Communicates policy positions with internal and external stakeholders
  • Oversees planning and execution of the Foundation’s Public Policy Institute and Teens Speak Up conference and Hill day.
  • Performs related work as required.

Education and Experience

  • Masters’ degree in public or health policy, government relations, and/or law degree preferred, bachelor’s degree required. May substitute experience for advanced degree.
  • Five to seven years of progressively responsible experience in health policy that includes experience in legislative and regulatory advocacy.

Specific Knowledge, Skill, Abilities, Licenses, Certifications, etc.

Knowledge of 

  • The effective principles and practices of legislative & executive advocacy as applied to the Foundation’s public policy priorities.
  • Congressional legislative and appropriations process.
  • Knowledge and understanding of key pieces of law, legislation and regulations in the areas of health care, biomedical research, disability, and civil rights.
  • Public policy and healthcare community of voluntary health agencies and professional medical societies.
  • Knowledge and understanding of civil and legal rights principles applicable to people with disabilities.

Ability to 

  • Advocate effectively in support of the Foundation’s public policy priorities with members of Congress and state legislators and their staffs, and federal and state regulatory agencies.
  • Keep abreast of developments in the field of health and disability policy and their impact on the Foundation’s public policy priorities.
  • Communicate effectively with the public, advocates, coalition partners and Foundation and affiliate/chapter staff.
  • Supervise department staff.
  • Excellent writing, analysis, and communications skills required.

How To Apply

Only online applications are accepted. Send resume, cover letter, and salary requirements to recruitment@efa.org.