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Epilepsy with parents
Sat, 10/27/2018 - 00:36Topic: Teen Zone
So I'm 16 living with TLE and patit maul epilepsy and my parents really don't understand how fatiuged I can actually get and how hard it gets to move and think I have tried explaining but they just think that it's atittude and it's not like the other day I was moving my PS2 like my mom told me and I had a really quick one next thing I knew I was getting yelled at apparently while I had that seizure I made a face that looked disrespectful and my parents are always yelling about me slouching they assume it's Just me being a brat or something but it's hard to move and that's why I slouch and I get yelled at because I get confused about the whole situation with my seizures and I wasn't confused a week ago but I also have really bad memory also I don't know what to do about this.
I'm so sorry your parents are
Submitted by Amy Jo on Sat, 2018-10-27 - 11:25
I'm so sorry your parents are not your best advocates. Parents aren't perfect but this is not ok. The thing is, they are unlikely to listen to you (being their child) so you need to pull in some help from someone they are more likely to listen to. Talk to your neurologist or maybe your neurologist has a NP that can have an appt dealing with educating your parents (I'd call their office to ask about these options). If you haven't already, talk with your doc about your quality of life issues and adjusting/changing medication to improve that. If you have TLE that's resistant to drugs (many are), ask about surgical options and find out if your situation could be vastly improved. Your school might have other resources and I'm not sure what other options you might have but your neurologist might have access to a social worker or suggest other resources.