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My Epilepsy Has Been Cured!

I use to have epilepsy and now it's been over 120 day without any seizures! This is because I recently had brain surgery as part of the SLATE study (https://clinicaltrials.gov/ct2/show/NCT02844465). I had a sclerosis in my left temporal lobe and the surgery used a basic laser procedure to remove the tissue with minimal impact. Since that time I have not had a seizure

I have had epilepsy for 35 years that continued to get increase in severity. My seizures started as simple seizures and grew in severity to where I had complex seizures every 12 days. It is now awesome to live in a life without seizures!

Curtis-

Comments

Hi Curtis_59fa6fc1eabfe,

Hi Curtis_59fa6fc1eabfe,  Thanks so much for sharing your story and congratulations on being seizure free for over 120 days, that’s fantastic news! Recovering from epilepsy surgery is a journey.Learn more about the recovery process and common themes for people living with epilepsy & family members during their journey through epilepsy surgery,here: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/surgery/re... and expectations for surgery will vary for each person. It’s important for those who may be considering surgery as a treatment option to review their goals & expectations with their epilepsy team.https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/surgery/go... it's helpful to connect with other people who live with epilepsy and have had similar experiences, to ask questions, share experiences, find & give support to each other. Contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community. Additionally you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional supportepilepsy.com/helpline  

Congratulations Curtis! As

Congratulations Curtis! As ConnectHelp noted, the outcomes for surgery vary from person to person, but when someone is seizure free and with minimal tissue removal...that’s even better! I wish you the best! May you be seizure free for the rest of your life!

Wow sounds  a bit like my

Wow sounds  a bit like my story except I haven't had the surgery.  It's been about 35 yr for me.  I have tried to explain my symptoms to doctors but because EEG's were normal I wasn't taken seriously.  I was diagnosed with idiopathic seizure disorder and only treated to prevent the grand mal.  The Neurologist I have now has changed my diagnosis to cortical dysplasia.  My seizures are getting worse as I get older.  I have the partial seizures as well but was never able to describe my symptoms well enough.  I might be a candidate for surgery but have to do the inpatient EEG to see if it will work for me.  I can't imagine life without medication and seizures.  It seems like an impossible dream. I  am so happy for you!

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