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Not seizures?
Wed, 04/15/2020 - 12:16Topic: Share Your Story
Hi, I’m new here & I was really hoping for others opinions that know/experience more of what I’m talking about. I’m 38/F & in Feb 2019, I was out to dinner with friends when I was just sitting & talking. I felt weird all of a sudden for just a sec & laid my head down on my bf’s shoulder. I stayed conscious & could see everyone but they were talking to me & it’s like I couldn’t hear them, I was completely zoned out. I just sat there staring, trying to make out what they were saying. I finally tried to answer them but for some reason they were asking if I was ok but I wasn’t making sense. Anyway I went to the Dr. was told it sounded like I had a seizure. Had lots of tests & scans, but they didn’t find anything & couldn’t make it happen again. During this past year I haven’t experienced anything like that again but I do still OFTEN get that weird feeling again. It feels like I get deep chills or something so I sit wherever I’m at & just concentrate on something pretty hard & it tends to pass in the next few mins & then I’m fine. This has been going on for a year. My bf is the only one that can tell when it happens to me cause he says I kinda giggle weird for just a moment & stay zoned out for about 30 secs or so. Kinda make no sense when I come back around for the next few mins....but with this information I don’t know if this really is seizures or could this be something totally different? With this pandemic right now I can’t go back to the drs for a while so I’m just wondering if anyone has any comments. I guess this is just not what I think of seizures as being but then what do I know seeing as I’m the only person I know with this!
Hi, Thank you for posting and
Submitted by Anonymous on Thu, 2020-04-16 - 08:22
Hi, Thank you for posting and for sharing your story. Seizures can take on many different forms and affect different people in different ways. https://www.epilepsy.com/learn/about-epilepsy-basics/what-happens-during-seizure .We cannot determine if these episodes you describe experience are seizures or not. It’s best that you follow-up with your healthcare team who is familiar with your medical history and can review this further with you. Many clinics and offices are now offering telemedicine options for non-emergencies, if you're unable to see your doctor in person currently. You may want to call your doctor and see if you can schedule a time to talk via phone/ other telemedicine resources you can utilize, or if they can make any additional recommendations. It may be helpful to keep a journal or a diary to help keep track of these episodes you describe experiencing and your symptoms. My Seizure Diary can be used to organize your health issues,manage medications, record side effects, other therapies or personal experiences and more which can be shared with members of your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally,you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance,and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline