MORNING SEIZURES & HEAT

There is some evidence that extreme temperature changes may have an impact on some people’s seizure frequency, but it’s typically the reverse situation (colder temperatures) from what I’ve read. That doesn’t mean, however that heat isn’t the trigger for your husband as triggers (if they exist for a person with epilepsy) are specific to that individual. It is more common, however for seizures to occur when a person is falling asleep, during sleep or shortly after rising from sleep, which you said you have noticed that he does have some of his seizures within an hour of rising from sleep. Something that you may want to pay attention to is whether he is getting adequate sleep prior to those events because sleep deprivation is a known trigger for many people who have epilepsy. As for your other question about demons...I’ve never been to a witch doctor about demons or epilepsy. I also don’t believe that my epilepsy is caused by demons. But, I’m a Catholic and a Catholic priest did approach me one time and he told me that I had seizures and where they were coming from in my brain. He had no prior knowledge from me or anyone who knew me and he gave me a blessing. That part of my brain hasn’t shown seizure activity in years even though the other side still does. My advice is to see if you can get your husband in to an epilepsy center where they have epilepsy specialists that can do an extended video EEG monitoring to better understand his symptoms before you try experimenting with other forms of treatment. 

Hi,Thank you for posting and for sharing your story. Sleep is especially important for people living with epilepsy.Most types of seizures are affected by sleep, although the degree varies widely from type to type and patient to patient. Some seizure types occur randomly.Others are not entirely random and can have an important relationship to sleep. To learn more about epilepsies that are related to sleep, visit: https://www.epilepsy.com/article/2014/3/sleep-and-epilepsy-faq . It’s also important to consider seasonal health and safety issues that people with seizures may have. Some people with epilepsy may be sensitive to heat, so staying cool is important . https://www.epilepsy.com/article/2018/7/summer-safety-people-seizures . It maybe helpful to keep a journal or a diary to help keep track of his seizures & triggers. By keeping careful records, you all and his doctor’s may be able to identify seizure patterns, allowing him to modify his behavior and lifestyle, as appropriate and be better prepared. My Seizure Diary can be used to organize health issues, manage medications, record side effects, other therapies or personal experiences and more which can be shared with members of his healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . It is common for some people living with epilepsy to report experiencing feelings of depression. It’s important that your boyfriend is addressing these challenges with his healthcare team & how this is affecting his health and daily life. https://www.epilepsy.com/learn/challenges-epilepsy . Additionally,it’s important that he review any changes in seizure types/ frequency, side effects, symptoms or behaviors, his healthcare team as well. Many clinics and offices are now offering telemedicine options for non-emergencies, if he’s unable to see his doctor in person currently. He may want to call your doctor and see if you can schedule a time to talk via phone/ other telemedicine resources you all can utilize to discuss this further, or if they can make any additional recommendations. Additionally, as Gianna mentioned in her comment, your boyfriend may want to considering seeking more specialized care for his epilepsy at a comprehensive epilepsy center, for further evaluation. https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist/find-epilepsy-center . It’s common for those who are in caregiver role to feel overwhelmed. It’s important that you’re making your health and overall  well-being a priority as well. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdfYou may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org.epilepsy.com/helpline  

HI and NO not voo doo at all BUT very familiar "feelings" for many ,many people actually and in saying that those feelings or what he is describing before "it" or what may well be his "aura" or pre-sz. period is just thatHis body and mind does increase by a few dgs. ,your not quite clear and may simply not know,but his own temp. does not mean that "the heat" was a trigger for a sz. ?although no doubt heat is a big trigger for many including myself,and I worked for yrs in extreme temps. and then another factor is running a fever which actually is my only true worry  ,it can be a little confusing:) You have the hardest part as "the witness" no doubt so hugs for you:) I put my former spouse through the wringer for yrs having 100's of them and at least I got to or had to sleep afterwards.I have not been active here for a while but would welcome to use the chat feature on here and also to read peoples story's on the adult forums on here,maybe not a lot of answers but should find a similar situation for what you and him are living   That down time or postictal time is different for everyone and leaves emotions,feelings,RAW is my fav. word.is no doubt true SHOCK and in my talking with 100's of others and my own experiences no two people ever describe this the same & depending on their life experiences FEAR has been one word that is common,there is no one answer,BUT knowledge of what is happening to you and what happened to you has been no. one . for me I started writing prose ,poetry to keep those feelings emotions and deal with "it" and music has and still is key .  I may have confused you more:) no uncommon for me:( but will to talk anytime. but knowledge is key. "PEACE TAKES PRACTICE" Rick