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Making Strides in my life

Mon, 11/13/2017 - 13:40
I am 25 years old now, I have had epilepsy since I was 8 years old. I slipped and fell on black ice, and hit my head on the concrete. That was only the beginning to the ridiculousness. I was basically ripped from almost all of my sports activities, I loved them all so much! I had tried close to a dozen medications. They had diagnosed me with petit meal absence seizures. I was so upset, but I made the best out of everything with it. By the time I was 13-14 years old, I had been able to be taken off the medication for my seizures the EEG came back normal enough to decrease the meds. I had never been so happy in my life. Well my 15th birthday hit, I had my first grand mal seizure. I didn’t remember anything, I didn’t even have an “aura” I went back on medication and went thru the whole process all over again. My high school career, was terrible. They say that is supposed to be the best time of your life. Well, I missed so much school, I struggled and had some pretty bad grades. I had teachers come to my house for home instruction. By the time of the end of high school, 2010 when I graduated I had my last seizure. (Knock wood). I got on the right combination of Topamax and Lamictal, I had never felt better. I truly had figured out that there really was a light and a pot of gold at the end of the rainbow. I went on to get my license, I went to college. I did so much I thought I would never do or was to scared to do thinking I would have a seizure. I went on a little later after switching my major to Nursing. I am now a pediatric nurse to critical and special needs children. For everyone who has really given up hope on their children, or on themselves. DONT, you still have time! I have so much that I have accomplished. Find the right combination of meds, notice what can trigger a seizure if it’s possible, work on a certain diet, get more sleep if you need it. Find what is needed for you. Getting things managed and helping yourself get better is possible! I hope this helps someone, I intend to spread, hope, and caring, and help to anyone and everything! Good luck to everyone on this tough but accomplishable journey!

Comments

That's so inspiring! Thanks,

Submitted by PollyKate on Mon, 2017-11-13 - 16:37
That's so inspiring! Thanks, Brooke.

Thank you for sharing my

Submitted by wolfman1 on Sun, 2017-12-03 - 11:56
Thank you for sharing my daughter who is now 21 almost 22 is trying to adjust from Lamicatal back to Depakote ....She to had petite absonce seizures when young. Was on Depakote for over 12 years never  had a Grand mall till last year. She shall we say had another condition Depakote was bad for. so they put her on Lamicatal. In the course of 1 year she has had several twitching or muscle spasms that have led to like 4 Grand mall seizures. So what did the Doctor do gave her so much Lamicatal it was at a toxic level. She could not even get out of bed. Now she has decided herself to go back on Depakote. This will take some time to adjust back to. In the mean time she is severely depressed and riddled with Anxiety. They gave her a Benzo spray to help if she were to have a seizure. Issue here is she is becoming dependent on it daily. Once again Doctor saying no oral Benzo to calm the nerves. I am afraid for her. She will run out of spray. Side effect withdrawal more seizures. I say this because i know they will not give her more . Which is so unfair. When you take a Seizure med with KNOWN side effects of anxiety etc which is exazorbated by fear of another seizure. I mean Jesus do these Neurologist just want folks in the hospital. Very frustrated DAD.

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