Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

First time seizures

my granddaughter just had her first seizure a few months ago. a second one a month later. she is 10. they are at night. she cones out of thrm with slurred speech and no control of limbs for a few minutes. she is so scared and cries uncontrollably. how does anyone out there cope with their reaction

Comments

Hi raenan1,Thanks so much for

Hi raenan1,Thanks so much for posting, we understand this can be very scary and confusing to experience. It’s important that you all continue follow-up with your granddaughter’s healthcare team to express your concerns and discuss any changes in side effects,seizure types, frequency, behaviors and symptoms, to determine what individual treatment is best for her. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVis... .          Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about epilepsy, what resources are available, how to make the most of doctors' visits, and how to take control of seizures & find self-management tools. Learn more, by visiting:  https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy It is common for those who are in caretaker role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well.  https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20facts.... Additionally,there are plenty of things you all can do to reduce these feelings and help to manage her epilepsy & safety: https://www.epilepsy.com/learn/managing-your-epilepsy Learn seizure first aid: https://www.epilepsy.com/learn/seizure-first-aid-and-safety Learn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe... Create a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around your granddaughter to understand what do if he has a seizure: Use a diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-... Track her seizures, record his medical history, medications, side effects, moods,triggers, or other personal experiences. Have a Seizure alert device:  https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Ale... The Wellness Institute: epilepsy.com/wellness  ,provides tools and strategies to better assist your loved one and support you in your important role. For practical & effective strategies to enhance your well-being, learn more here:  https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools For assistance finding specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist www.naec-epilepsy.org Additionally you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources,  provide referrals and additional support.epilepsy.com/helpline  Or contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community. 

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline
P