Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

Dont trust neurology

Since 2014 ive been having seizures. Test results show to epilepsy. They tell me that they dont know what causes the seizures so they put me on medicine that doesnt work and makes me more anxious. Knowing the neurologists dont know what they are doing makes me even more angry. Makes me wonder how pharmaceutical companies have a big control over doctors and how the doctors make money of me being sick


Hi Ericorn123, Thanks so much

Hi Ericorn123, Thanks so much for posting. We understand how frustrating it is when you feel like your doctors aren’t helping you. help finding a doctor specializing in epilepsy please visit,  ,or by visiting the National Association of Epilepsy Centers at, & Additionally, you can always call our 24/7 Helpline at,1-800-332-1000,or email us at,, where a trained information specialist can assist in connecting you to resources, provide referrals and additional support.  You may want to consider tracking your seizures, using a diary: , or a seizure alert device: tools may be helpful in identifying & tracking seizures, other symptoms, managing medication & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with your healthcare team.The Wellness Institute:  ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing your quality of life. Learn more here: , for practical & effective strategies to enhance your well-being.

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

24/7 helpline