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Best Neuropediatric in the WORLD please!!
Tue, 07/31/2018 - 15:01Topic: Share Your Story
Hello, i’m from Portugal and i have a baby with 12 months.
When she was 5 months old she had her first seizure .. the rmi did not detect anything and for 3/4 months she was ok with vigabatrina and phenobarbital... after that she had a gastro and since then things are getting worst.. medication constantly changing and not getting better. At the moment she is on the intensive care and nothing seems to work. The thing is, there is no diagnostic yet... first genetic results came negative, we are waiting for more results. Nothing was found yet and no medication is reducing/stoping the seizures.. i will go anywhere in the world... for her!!! Please HELP her ❤️
Comments
I don't if this can help but
Submitted by crispymat on Sat, 2018-08-18 - 13:04
I don't if this can help but in the Netherlands there is a clinic that especialised mainly in Epilepsy and they can provide a "second opinion" to foreign patients. Link:https://www.sein.nl/en/second-opinion/
HelloI realize Massachusetts
Submitted by jfilush on Sat, 2018-08-04 - 10:33
HelloI realize Massachusetts is a bit of a trip, but there is a pediatric neurologist at Boston Children's, Dr. Annapurna Poduri, that one of my neurologists swears by