Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Atonic drops
Thu, 10/24/2019 - 18:15Topic: Share Your Story
Hi
I've noticed over the last few weeks that l am getting sudden drops while out walking. Well l used to get the odd one, but they seem to be happening a bit more often now. I am 59 and have had epilepsy for 40 years and am on epilim 200.
I dont think it's anything to do with taking metformin for type 2 diabetes which l was diagnosed with about 3 months ago as my doctor told me that metformin does not interfere with epilim, so l can only imagine its cos l am getting older.
The drop attacks are worrying me a bit now as they seem to be happening a little bit more often now!
Hi, Thanks for posting, we
Submitted by Anonymous on Fri, 2019-10-25 - 09:22
Hi, Thanks for posting, we understand this must be very scary and confusing to experience. We cannot determine if your increase in seizures is related related to your medication, or not. It’s important that you continue to follow-up with your healthcare team to discuss your increase in seizure frequency, seizure types, side effects,behaviors, or symptoms, to determine what treatment is best for you. To learn more about Epilim, potential side effects and interactions, visit: https://www.epilepsy.com/medications/valproic-acid/advanced You may want to consider keeping a diary, or a journal. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for tracking seizures, setting reminders, recording your medical history, managing medications,side effects, moods, behaviors & triggers, which can be shared with your healthcare team. You can track changes over time, keep records of your medications, and create a Seizure Response Plan or Action Plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those who are close to you to understand what do if you have seizure. Additionally,you may want to review our seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf You may also contact our Epilepsy and Seizures 24/7 Helpline:1-800-332-1000, contactus@efa.org, where a trained information specialist can connect you to resources,provide referrals and additional support. epilepsy.com/helpline Or contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community.