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Absence seizures??

Wed, 11/15/2017 - 23:41
My step daughter is eight years old and had her first seizure around a year ago. We witnessed her first seizure Dr says a prolonged absence but I’m not sold on that it lasted approx 10 min with contractions to left side real lethargic afterwards she was placed on Ethosuximide and had no seizures afterward until her mother complained she was having stomach issues. So the Ethosuximide was titrated down and dc’d and depakote was prescribed that’s when everything went out of whack. She started having these absence seizures (she did not have when we was taking the Ethosuximide) all day long in school and some at home I only witnessed two however her mom says she had observed some also She was started back on the Ethosuximide injunction with depakote. Recently had eeg done and did not show any epileptic activity - depakote was titrated down and discontinued, still taking Ethosuximide. She is still having these absence seizures at school, no where but school. Teachers time and write down and supposedly can last up to twenty minutes. So I went up to school and sat in class within her to observe ( Im a nurse also ) however she did not have any the whole time I was observing. When I left around lunch she had some that afternoon. We only get her every other weekend and we have noticed every Sunday night we have her she will wake up 3-4 times and state her head and or stomach hurts and this child is wide awake. We have asked her multiple times if something is wrong /nervous about anything but all we get is nothing. She stays with her mother during the week so we do not know what is going on all the time. Just trying to see if anyone else has had this experience could it be sleep deprivation (def thinks she needs more sleep) separation anxiety , acting ? We just can’t figure out why it is only happening in school. ( she went to summer camp at this school also and did not have any issues and no seizure all summer long)

Comments

did they do an EEG? did they

Submitted by Amy Jo on Thu, 2017-11-16 - 01:32
did they do an EEG? did they see generalized activity on it? absence is usually easy to catch on EEG. but absence can be confused with complex partials so it is time to consider consulting another doc, ideally a pediatric epileptologist. complex partials are usually infrequent but last longer. absence usually occur frequently but are super easy to miss (easy to see on EEG, often triggered by hyperventilation). common seizure triggers are lack of sleep, illness or fever, and stress. 

We have had multiple eeg done

Submitted by Am17 on Thu, 2017-11-16 - 07:47
We have had multiple eeg done the first couple showed prolonged absence the said. we even did the three day eeg study but nothing was found. This last eeg showed no epileptic activity but yet she is still having the episodes in school they tell us she can be out for sometimes 20-30 min at a time but mostly around ten minutes throughout the day . I believe her first seizure was partial complex but it was never validated as that. We just can’t wrap our head around why it’s only at school 

If she was on medication on

Submitted by Amy Jo on Thu, 2017-11-16 - 12:33
If she was on medication on the later EEGs, it would make sense that there was less to see. That doesn't mean that all seizures were controlled (because it sure seems like there's a specific but unknown trigger) but it's a good indication the meds were working at least in part.Generally one consults an epileptologist if seizures are not completely controlled after a year. If you aren't working with such a doc, please consider consulting one. The prolonged absence is concerning as that's not a the common presentation so an epileptologist is a good idea when things are not common. Note that one can have mixed seizures, one of a few different ways things might be confusing. My child had atypical absence and myoclonics on her last EEG when we were looking to catch partials (there's a solid history of partials both simple and complex but never got more than some associated activity on a prior EEG) so when you said it was a prolonged absence, that was kind of how my child's seizures were as the medication left her system - although heading more toward continuous activity :(

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