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New to Epilepsy - Here to support

Hi all. I am new to the forum, here to learn more about research, advocacy, and education. I am part owner of a CBD company that instituted a system whereby every sale triggers a $1 donation to a research organization of the customer’s choice. Epilepsy was the first cause selected to receive donations. We want to learn more about epilepsy, find more ways to help, and keep up to date on research. We also hope to participate, as a company, in fundraisers beyond our sales, and we hope this forum will help us find more opportunities to be active in the community.

Stay Strong!!!!!!

Comments

Thank you for supporting

Thank you for supporting epilepsy research.  Of course seizures are a prime concern for those of us who live with epilepsy, but I hope you will eventually understand that epilepsy is more than just a seizure disorder.  It is a neurological condition which can easily effect the mind and a person's mood.  I hope the CBD company can help us.  Let us know more specifically how we can help your company.

You might want to call the 24

You might want to call the 24/7 help line and talk to them about this they may have other ways for you to assist. That number is 1-800-332-1000

Thanks for the feedback

Thanks for the feedback Michael. We've done some research and actually written some blogs about awareness related to Epilepsy with our novice understanding. Our goal here is not to find help for our company, but to find out more about Epilepsy and seek better ways for us to help. Our system allows our customers t decide where our donation goes, and this community (Epilepsy Foundation) is one of the recipient options. We know we can help, but we hope it makes a difference.

Thanks for the feedback

Thanks for the feedback Michael. We've done some research and actually written some blogs about awareness related to Epilepsy with our novice understanding. Our goal here is not to find help for our company, but to find out more about Epilepsy and seek better ways for us to help. Our system allows our customers t decide where our donation goes, and this community (Epilepsy Foundation) is one of the recipient options. We know we can help, but we hope it makes a difference.

Thanks just_joe. We've

Thanks just_joe. We've actually spoken with Epilepsy Foundation before our new site launched to find the best way for us to donate. At each transaction, our customers can choose from 4 foundations that we will donate too at the end of each month. Epilepsy Foundation was one that we chose to be a recipient. They were very pleasant to speak with, which I can say wasn't the response from every organization we reached out to. Currently we are looking for a 5k to participate in, in the Denver area, that the proceeds with benefit Epilepsy awareness and research. If you hear of one, please advise.

One of the issues is it is

One of the issues is it is not approved in some states so heck with the EFA to find out what needs to be done there and the testing that they have to do to get it approved

One of the issues is it is

One of the issues is it is not approved in some states so heck with the EFA to find out what needs to be done there and the testing that they have to do to get it approved

There are many different

There are many different things MJ can help with. If calms down the central nervous system and by doing that the electrical impulses are slowed down some which helps them hit right for some people. What causes a epileptic seizure is an electrical impulse hitting wrong or abnormally in the brain. That wrong hit causes a chain reaction. Which is the seizure itself. <<That is the simplest terms to use to tell people what a seizure is. There are many different types of seizures. By calming down the central nervous system those abnormalities are slowed down and like medications they can stop seizures. There is no magic wand to wave since there are many different causes and with many people there is no cause found. What can CBD do to stop an abnormal impulse hitting wrong here scared brain tissue is?We've done some research and actually written some blogs about awareness related to Epilepsy with our novice understanding.   <<<< Research the doctors offices that do testing and the FDA and find out about all the testing done on medications. Believe me that is one thing that needs to be changed. Understand that testing is done for years. Once approved the FDA asks the makers how much they will let another country pay for it after the testing is paid for. The maker gives they the price and then the FDA tells them to have the countries pay that price before the testing is paid for. Meaning we have a higher price since we are paying for the years of testing. I found out some of this which isn't much because I have been in tests done by one of the offices here in Texas.

Hi everyone, First of all,

Hi everyone, First of all, thank you to anyone interested in promoting epilepsy awareness, education and research. I want to share a word of caution that not all cannabis, medical marijuana products are the same - in fact they can be vastly different Do not read results of controlled clinical trials of one product and assume it means the same for other cannabis products. Thank you, epihelp

Hi everyoneFirst of all,

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Hi everyoneFirst of all,

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The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
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