Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

New to Site, Tapering Off Topamax..Have Concerns..

Sat, 02/17/2018 - 22:00
I happened upon this site through googling to see if it was possible to have withdrawal symptoms when tapering down off of Topamax. My doctor is trying to take me off of it because she switched me to Keppra. I was taking 200mg in the morning and 100mg at night of the Topamax. Then last Sunday, 2/4/18, she had me drop down to 150 in the morning and 100 at night and keep it that way until tomorrow (2/18/18). My concern is we tried this last year in September only we did it faster, we did it at a 50mg drop every week, and by week two I had two seizures in one day. Both happened in my sleep (mine always do), one was during a nap(when I was home alone) I took in the afternoon and when I woke up I had lacerations on both sides of my tongue and my head felt like it was in a vice grip; the second one happened later that night when I fell asleep on the couch watching tv and my boyfriend was there to witness it so he called the ambulance. I couple of nights before the seizures I started having this weird feeling like when you're off balance almost, and my head started to feel like it was being squeezed. Are these normal withdrawal symptoms or are these early onset symptoms? Because I'm having the same feelings again and I want to catch this crap before it happens again. I've never had seizures before. They just started out of the blue back in 2015 during an abusive relationship that my neurologist thinks is the cause of them actually..so I'm just having to live with them more or less and I'm trying to learn what I can about them and what to expect. Thanks in advance for the help and info!!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.