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Weaning off lamotrigine
Thu, 07/11/2019 - 20:04Topic: Medication Issues
I've been taking lamictal for about 7 years now, and my doc finally agreed to let me try weaning off. I tried every seizure drug over the years, but they were never under control until I had surgery. It's been over 3 years since my last surgery, and my last seizure :D
It's been so long I can't even remember all of the side effects that I've gotten used to dealing with.
Anyone with some experience with weaning off? My doc warned about withdrawal seizures, but otherwise not sure what to look out for over the next few weeks.
Hi ephyk, Thanks so much for
Submitted by Anonymous on Tue, 2019-07-16 - 12:50
Hi ephyk, Thanks so much for posting. It’s important that you continue to follow-up with our healthcare team to discuss any changes in seizure types, frequency, behaviors, side effects and symptoms. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdfFor more information regarding Lamotrigine and stopping seizure medications please visit: https://www.epilepsy.com/medications/lamotriginehttps://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/stopping-medicationIt may be helpful having a device: https://www.dannydid.org/that can help track seizures: https://www.epilepsy.com/learn/managing-your-epilepsy/tracking-my-seizures/importance-tracking-seizuresAnd by keeping a seizure diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryThese tools may help in identifying & tracking seizures, other symptoms, managing medication & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with your healthcare team. https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf Additionally our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org, can assist in connecting you to resources, provide referrals and additional support. epilepsy.com/helpline