Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
loss of taste from tegretol
Wed, 03/04/2020 - 16:50Topic: Medication Issues
I was experiencing total loss of taste after starting on tegretol. My doctor asked me stop the medication but my taste did not return. I am wondering if my sense of taste is destroyed for good or when it will return. Have anyone had similar experience and do you know if the taste will return. If so, how long will that take?
Hi, Thank you for posting. We
Submitted by Anonymous on Thu, 2020-03-05 - 10:23
Hi, Thank you for posting. We are glad to hear that you’reworking with your doctor to help find an individual treatment plan that works best for you. Treatment and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. To learn more about Tetregol and things to look for, please visit: https://www.epilepsy.com/medications/carbamazepine . It’s important that you’re continuing to express your concerns regarding your loss of taste if that’s related to your medication and if you experience any changes in side effects, symptoms, moods, behaviors, or seizure types/frequency. You may want to consider keeping a journal or diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary ,is a great tool for identifying & tracking seizures and triggers, setting reminders, managing medications & side effects, recording medical history, moods, behaviors,and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally,you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance,and access to national and local resources. 1-800-332-1000,or contactus@efa.org. epilepsy.com/helpline