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Keppra- Is this normal?

Fri, 10/25/2019 - 01:13
Hi, I’m new to this and havent been diagnosed with epillepsy. I had the first seizure of my life about a month and a half ago. No determining cause, maybe debdration, lack of sleep.. EEGs came back normal but I’m told they don’t always show in an EEG. I was prescribed Keppra and foolishly didn’t check side effects until now. I assumed a lot of my issues were from the seizure. But, now it seems like I am experiencing several of the “rare” side effects. Since they are rare, I’m worried something else is going on and isn’t just the medicine. Has anyone else experienced these side effects? Lack of focus, decreased memory, muscle twitches, shakiness, restlessness, discomfort in my jaw, lack of appetite, tingling in arms and legs, insomnia, changes to skin texture, anxiety, apathy, songs getting stuck in my head that I haven’t heard in years and they last for a LONG time, dreams that include people and things I haven’t seen or thought about in 20 years (obviously not a terrible side effect, but weird), just don’t feel like myself, chivering/ sweating randomly Any thoughts?

Comments

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Hi, Thanks for posting.

Submitted by Anonymous on Fri, 2019-10-25 - 09:25
Hi, Thanks for posting. Treatment varies for each individual,so it’s important that your following up with your healthcare team to discuss these new side effects you describe, as well as, any changes in seizure frequency/type, changes in moods, behaviors & symptoms, to help determine what individual treatment plan is best for you. For more information regarding Keppra, seizure medication side effects, visit: https://www.epilepsy.com/medications/levetiracetamhttps://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effectsOur new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about epilepsy, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety, & find self-management tools. Learn more, by visiting:  https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsyYou may want to consider keeping a journal, or diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for tracking seizures, recording medical history, medications, side effects,moods, behaviors, triggers, and other personal experiences, which can be shared with her healthcare team. My Seizure Diary also helps you remember what to do - you can have reminders of when to take medication, when to refill a prescription, medical appointments and tests. Additionally, you may always contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline  Or contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates

I’m a licensed clinical

Submitted by Patriotrehab on Fri, 2019-10-25 - 12:25
I’m a licensed clinical social worker and certified rehabilitation counselor as well as a person with epilepsy. I’ve had many different types of seizures over 19 years due to medical neglect while pregnant with my only son who is now a healthy adult. You’ve done an excellent job so far of making a list of symptoms. As ConnectHelp advised, it’s important to keep a journal or diary of these changes. Some of them may be medication, but when you experience them, pay close attention to how and how long. For example...the songs in your head. Are they typical of a song getting stuck in your head like it used to be before you had a seizure or is it actually something that you hear in one ear or both ears (even internally) and is it hard to follow along? How long does it last? Is the event similar or different each time? Tingling in arms and legs, provide more details including which ones and time it...does it help if you try to shake it out or wake it up, rub them to get more circulation etc. I say some of this because  when I first started having my seizures I didn’t know that auditory sounds and numbness extending up my right arm were two different types of seizures that I was having. One took nearly a year to get diagnosed even though I had already been diagnosed with epilepsy because I didn’t know what it was or to tell my doctor and another took 19 years to figure out after being misdiagnosed as carpal tunnel syndrome because I first told my primary care doctor about it and he jumped to conclusions. Your neurologist if you’re being treated by one needs to know about all of these symptoms with as much detail as possible. They may change the medication and try another.

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