acetizolimide discontinued

Hi,Thank you for posting, we understand your frustration and concerns. Treatment and how the body may react to certain medications varies for each individual. It’s important that you're following-up with your neurologist to explore this further and if you experience any changes in seizure types/frequency, moods, behaviors and side effects to determine what individual treatment plan is best for you. Your pharmacist may also be able to provide you with additional information or resources to review with your healthcare team. Contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates , who can provide assistance finding local resources, programs, support groups and events in your community to help. Or you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline    Additionally, you may want to consider keeping a journal or a seizure diary. My Seizure Diary can help identify and track seizures & triggers, record medical history, set reminders, manage medications, side effects, moods, behaviors, and personal experiences that may affect seizures and wellness, which can be shared with your healthcare team.https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary

I've had epilepsy for 45 years, been on 20 different AED, allergic to 2 topiramate and celontin, member of 4 drug studies Sabril, Zonisamide, Topamax, and 1 that was just a bunch of letters and numbers

I can relate.  Cadista brand lamotrogine was like a miracle for me since 2010.  Always a hassle to get,, living in FL.  However I have family in CT that can get it in COSTCO.  They special order it and it is very inexpensive. 2 weeks ago I ran out of CADISTA and costco was unable to get it for me, so I too this Alembic, gave me severe acute panic attack.I was on Tegretol (14-30 like a zombie) when they gave me a different suppliers genric (taro or teva) and I had my first grand mals since first starting tegretol in 91-92.  The effects of switching suppliers for people with seizures in CT is now a state law.  Everyone reacts differently to the meds, so what may work for one may have devastating effects to another.  I can only give my experiences.  Good luck, I can relate.