Sseizures and AKI ??

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Hi everybody, I have been on here a couple of times and received some great advice so since my last episode kept me in hospital for a week I thought I would ask for some opinions again please. So this all started while I was asleep in my bed, parents heard groaning coming from the room and then came in mid seizure, I had already wet myself and the bed was covered in sweat so presumably I had a couple before they got in. While they were there I had multiple seizures and some of different types from asleep in bed to trying to stand up and falling, breaking a table. When in hospital they treated me for some kidney injuries as they said my kidney function was not where it should be and worsened over the next 4 days all the while I was being pumped via an IV drip. After 7 days they said my bloods were stabilized enough to let me home but never gave me any real follow up information on kidney injuries or ways of life going forward to stop this happening. If anybody has any information or past experience they could share I would be greatly appreciative. I'm only gone 27 and epilepsy has taken my life over the last 3 years and with no auras, triggers or signs it makes it nearly impossible to go anywhere on my own. Thanks in advance, Wayne O Reilly

Comments

Hi, Thanks for posting and

Submitted by Anonymous on Tue, 2020-01-14 - 09:35

Hi, Thanks for posting and are so glad you feel like you've gotten some great advice from the forums. We are sorry to hear about your recent hospital stay; it sounds like you’ve been going through a lot. It's important that you’re continuing to follow-up with your healthcare team to review this further and if you continue to experience any changes in seizure types,frequency, side effects, symptoms, moods or behaviors to determine what individual treatment plan is best for you. respond. There are many different devices that can help detect seizures and notify someone to help respond Review our seizure alert device factsheet, to review with your doctor and family to see if this is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfLearning to lessen risks is a critical part of living safely with seizures. Explore or section on staying safe, recognizing risks and safety tips, here: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe And talk to your healthcare team about seizure safety and for assistance & input developing your safety plan, which may be helpful in preventing injuries in the future. A main part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Review our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living to learn more about things to consider for independent living, resources that are available & when help is needed. Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. However, it’s important to remember that you are not alone, and we are here to help support you. It is also important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health If you ever need to speak with someone please contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offerhelp, hope, support, guidance, and access to resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline ,or contact your local Epilepsy Foundation, to find support groups, events, and programs in your community.

Hi, Thanks for posting and are so glad you feel like you've gotten some great advice from the forums. We are sorry to hear about your recent hospital stay; it sounds like you’ve been going through a lot. It's important that you’re continuing to follow-up with your healthcare team to review this further and if you continue to experience any changes in seizure types,frequency, side effects, symptoms, moods or behaviors to determine what individual treatment plan is best for you. respond. There are many different devices that can help detect seizures and notify someone to help respond Review our seizure alert device factsheet, to review with your doctor and family to see if this is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfLearning to lessen risks is a critical part of living safely with seizures. Explore or section on staying safe, recognizing risks and safety tips, here: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe  And talk to your healthcare team about seizure safety and for assistance & input developing your safety plan, which may be helpful in preventing injuries in the future. A main part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Review our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living  to learn more about things to consider for independent living, resources that are available & when help is needed. Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. However, it’s important to remember that you are not alone, and we are here to help support you. It is also important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health   If you ever need to speak with someone please contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offerhelp, hope, support, guidance, and access to resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline ,or contact your local Epilepsy Foundation, to find support groups, events, and programs in your community.

Hi, Thanks for posting and are so glad you feel like you've gotten some great advice from the forums. We are sorry to hear about your recent hospital stay; it sounds like you’ve been going through a lot. It's important that you’re continuing to follow-up with your healthcare team to review this further and if you continue to experience any changes in seizure types,frequency, side effects, symptoms, moods or behaviors to determine what individual treatment plan is best for you. respond. There are many different devices that can help detect seizures and notify someone to help respond Review our seizure alert device factsheet, to review with your doctor and family to see if this is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfLearning to lessen risks is a critical part of living safely with seizures. Explore or section on staying safe, recognizing risks and safety tips, here: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe And talk to your healthcare team about seizure safety and for assistance & input developing your safety plan, which may be helpful in preventing injuries in the future. A main part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Review our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living to learn more about things to consider for independent living, resources that are available & when help is needed. Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. However, it’s important to remember that you are not alone, and we are here to help support you. It is also important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health If you ever need to speak with someone please contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offerhelp, hope, support, guidance, and access to resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline ,or contact your local Epilepsy Foundation, to find support groups, events, and programs in your community.

Hi Wayne,Not sure if I’ve

Submitted by Patriotrehab on Mon, 2020-01-20 - 01:14

Hi Wayne,Not sure if I’ve seen your posts before, so sorry if this is advice you’ve already been given or if you’re already doing this kind of thing. But, given what’s happened with your seizures...if you haven’t already been to an epilepsy center to be evaluated by an epilepsy specialist... you probably should be. They can learn a lot by doing an extended video EEG monitoring and other testing as well as get you connected to a network of specialists to be a part of your treatment team. I’ve had intractable multifocal epilepsy as a consequence of medical negligence from nearly twenty years ago, but an epilepsy center has finally started to make progress in understanding the nature of my epilepsy and treatment because they have access to different tests than other neurologists. If you are already seeing one, please let them know about your recent hospitalization as well as your primary care doctor and ask them about any recommendations for follow-up care especially related to your kidneys. Part of the medical negligence that I experienced also injured my kidneys, but the way that I understood it was that I didn’t need follow up care because the hospital that I was transferred to had stabilized me. I hope that was the case for you too.