Back from VEEG

Hi all ! Hope everyone had a good x-mas. I did although I slept alot. I have an awesome hubby though and he endedup cooking dinner and keeping up with the messes. Well anyway about the veeg. I went in the hospital on the 23 of November and was there for 12 days ! Came home and was exhausted for days,I could'nt understand that because I had just sat on my butt for so long, my friends and family said to take it easy on myself I had just been off my meds for a long time. They are very in tune with me and always notice any changes in my behavior. It all started with meeting a new Epiletologist. I was very nervous as I had met many doctors over the years and have not always had the best experiences, in fact most were horrible. With this one I left his office feeling like oh my god somethings accualy going to happen this time, I'm going to get some help! He is a very nice man but very professional aswell. He knew immediatly which medication was causing the the awful side effects. I was taking Clobazam(which he later explainend stops helping after 6 months to a year)also Epival and Lamictal.When we spoke about side effects(horrible shaking at times,slured speach,off balance,unability to find correct words and tiredness to name a few.My good friend said I look like It hurts to think.) The doctor said it was the Epival and the first thing as far as meds go was to eliminate that one and right away get rid of the clobazam as it was'nt doing anything but tiring me anyway. The he told me that we would start with having the VEEG,probably a month from then but be on 24 hour notice and be prepared to stay 7-10 days but if they get enough info early I would go home sooner.Sure enough 2 days before the ecspected month I got the call and checked in November 23. I got there and the tech. who does eegs aswell put all the electrodes on and attached them to my new friend the recorder box(you can unplug occasionaly to go to the washroom or for those who smoke,to go for one of those)I smoke but in 12 days I only went for three!Why would anyone want to risk having a seizure and it not be recorded! Well slowly I was taken off my meds until I was on none,and I was getting very discuraged. It was day 7 and nothing,so I was asked if I would like to take off the electrodes and have a shower then put them back on again to continue monitoring or go home and come back again I was stubborn and went for the shower and the longer comitment.Still nothing so he said I would go home the 5th and come back again. I was'nt terribly depressed though as at least the meds would be fixed up, and I felt like a new woman being off all meds for awhile.Everyone noticed a difference right away.But low and behold I had 4 the day before I was to leave! So the next day he took hubby and I into the "secret" room and showed us the video and the computer data of the events. It was so cool watching myself have a seizure and seeing the data at the same time,twisted, maybe but now I have prouf that I realy am having seizures.It was funny when he showed us one of them, he slightly showed the begining of it then asked what was happening, I told him the typical start of a de ja vu he quikly stopped me and said I was lying to him(in a very humorous way)then continued the scene. When my nurses came in to ask questions I said I do'nt think it started with a de ja vu this time.This is where he showed me that I was having a different type, right temporal seizures as well as my usual left.Apparently my right could have learned from my left how to have a seizure but we still need to see if it's not a case of the sezure starting and then spreading to the rest of my brain.Well it was a long 12 days but worth it.For now my meds will be changed to ween off the Epival and start Keppra. Now I will have a different mri than usual.They phoned me with that appointment the same day as I left the hospital and it's only a month away!that is amazing for here. Two days later I got a letter from eds(whatever that is)saying the Keppra would be paid for 100%.My pharmicist said that was very unusual,apperently my doctor sent in a request,thank goodness, I was told they are very costly. So my dear freinds and newcomers there is hope that you also will get this kind of help with prservierence and help from this site and these people to help you along and stand behind you. I hope that everthing I have told you about my experience will help if you are going for a veeg.Oh ya take spare cloths(button front shirts)and supplies for a daily sponge bath.I also did a whole crossword book and read a book.