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George,You're right; the
Submitted by birdman on Sat, 2020-06-20 - 21:36
George,You're right; the symptoms you describe do sound very much like partial seizures to me. I did lip smacking as a child. Also fear and deja vu are symptoms I feel during some of my seizures. You used the term "focal partial seizures". They used to call them partial seizures as the seizures come from part of the brain. Recently they changed it to call them focal seizures as they can identify a focus that sometimes can be treated surgically if medications do not work. These can happen with impaired awareness, but it sounds like your wife is having them without impaired awareness which is very common but deserves treatment.Did I understand you that you feel she is hiding information from you? I've had epilepsy all my life (>50 yrs) and I have been hesitant to share everything with others. I imagine others are hurt by this but I would like to share a few thoughts why this may be:-- The symptoms can be very strange and hard to explain. I've often felt foolish trying to tell others including my doctor about what I feel. I'd say it's good that you can listen and make no judgement. And do not go talking too much to others about what she is experiencing as it m at least until she is more comfortable talking more about it. This forum is an excellent place to share but talking openly in daily conversation may break some trust trust between you.-- I enjoy me freedom and independence and I dislike it when others feel they need to watch over me very carefully. Maybe your wife is having more events than she wants to share but does not disclose this. Again the uncertainty of what she is experiencing can make her feel a little silly and humiliated. It may be that she would welcome your support during this scary time. On the other hand she may prefer to be left to deal with it more on her own so that her independence is not jeopardized. Be sensitive to this and maybe ask her how she would like you to react to her disclosure of information. Thanks for sharing your thoughts her on this forum,Mike