Community Forum Archive

Hi, Thank you for posting and we understand your concerns. Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. However, it’s important to remember that you are not alone and one of the most important things to help you live with epilepsy is to find a support network. Learn more about your community support options and living with epilepsy as a young adult, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns https://www.epilepsy.com/learn/age-groups/youth/day-day-living  The effects and risks of so-called recreational drugs vary greatly, they may directly affect the brain and seizures or interact with seizure medications: https://www.epilepsy.com/learn/triggers-seizures/drug-abuse                                                                                          It’s important that you discuss this further with your healthcare team to review how marijuana use may affect your individual treatment plan and if you continue to experience changes in seizure frequency, or seizure types, side effects, moods behaviors & symptoms. You may want to consider keeping a journal or a diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for tracking seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers, and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team.Additionally, you may always contact our Epilepsy and Seizures 24/7 Helpline: epilepsy.com/helplinewhere trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org.

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Doctors told me not to smoke marijuana. Mainly because it would damage the brain tissue that was already damaged(that causes my seizures) and make it worse. So, all depends on the person. Marijuana can be helpful to some people but not for everyone.