Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Hi, Thank you for posting and
Submitted by Anonymous on Tue, 2020-01-07 - 09:15
Hi, Thank you for posting and we understand your concerns. Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. However, it’s important to remember that you are not alone and one of the most important things to help you live with epilepsy is to find a support network. Learn more about your community support options and living with epilepsy as a young adult, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns https://www.epilepsy.com/learn/age-groups/youth/day-day-living The effects and risks of so-called recreational drugs vary greatly, they may directly affect the brain and seizures or interact with seizure medications: https://www.epilepsy.com/learn/triggers-seizures/drug-abuse It’s important that you discuss this further with your healthcare team to review how marijuana use may affect your individual treatment plan and if you continue to experience changes in seizure frequency, or seizure types, side effects, moods behaviors & symptoms. You may want to consider keeping a journal or a diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for tracking seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers, and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team.Additionally, you may always contact our Epilepsy and Seizures 24/7 Helpline: epilepsy.com/helplinewhere trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org.