Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Please read

Thu, 07/25/2019 - 19:48
Hello,,,,, please read My epilepsy team I haven’t been around for a while but I have greattttt information and news. I have epilepsy I have been and multiple medications but I was still having grandmals, focal seizure well you name it. Doctor at one point recommended me brain surgery, but honestly i thought about it and I told my doctors let’s hold off for now, well my triggers are lack of sleep and stress basically one night of bad sleep it means a grandmal, they had added me more medication the honestly I HATEEEE THE WAY IT MADE ME FEEL, till I had a conversation with my girlfriend and said IT HAS TO BE SOMETHING ELSE OUT THERE, well to make this short again people I got into Keto diet and quit all my medication cold turkey, it’s been 3 months seizure free with no medication and one of the big test on this was this month my father passed away in Costa Rica, so I took a plane I didn’t sleep for over 35 hours I was stressing crying that was on the beginning of the month and still ANY KIND OF SEIZURES. Is a hard diet but is worth it, it has change my life. So if you have lost any hope believe me this can help, try it, make an effort and love yourself. Let me know if You need my help.


Hi Tasies, Thanks so much for

Submitted by Anonymous on Mon, 2019-07-29 - 09:04
Hi Tasies, Thanks so much for sharing your story.  Congratulations on being seizure free for over three months, that’s fantastic news! It’s great that you’re able to identify your triggers: which is an important aspect of managing your epilepsy. To learn more about epilepsy self-management,visit: Prior to making any changes in treatment, it’s important that-individuals living with epilepsy consult with their healthcare team to determine what individual treatment is best for them.  For more information about dietary therapies and the Ketogenic diet please visit: 

Keto diet is known to help

Submitted by Misjoey101 on Sat, 2020-06-27 - 01:33
Keto diet is known to help with seizure activity but, I hope you talked to your doctor before you went cold turkey on the pills.(or at least went off slowly). That's a risk too big to take.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.