Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Surgery and Devices

thoughts @ VNS and Feeling sorry

03/2005 | 4 Comments

Hi there, I am new to the vns in that I had it put in last September, Then had complications with loosing my voice for a long time. Thought I would...
VNS adjustment and sensitivity

03/2005 | 1 Comments

I am looking to connect with any one who has intractable seizures , had a VNS (with success) put in and is sensitive to the settings. I had one put in...
Hemispherectomy

02/2005 | 9 Comments

I am the nanny of a 9 year old little boy who had a anotomical hemispherectomy just over 3 weeks ago. He has been very sick since the surgery. His...
My daughter

02/2005 | 2 Comments

Hello.....ok, where to begin! My daughter is 13 years old, her name is Caylan. When she was 5 years old her first ever (that we knew about anyway)...
Epilepsy Disorder

02/2005 | 0 Comments

Hello! I have been having seizures since 199, the doctors still have no idea where they are coming from. From what I know I was never in an accident...
should i have surgery?

02/2005 | 29 Comments

could someone please tell me what experiences they had when they had surgery for epilepsy? i'm debating it once again, am scared to death of the...
Considering Surgery

02/2005 | 8 Comments

I have recently been diagnosed with temporal lobe epilepsy. I have had these "spells" for about 3 years and never in a million years would I have...
right temporal lobectomy

02/2005 | 123 Comments

Has anyone in this group had or knows someone who has had a right temporal lobectomy?John
Vagus Nerve Stimulation Therapy

02/2005 | 39 Comments

I am looking for some one that has had the VNS implant procedure done. My family is considering the procedure for my brother and we would like to...
Considering Surgery

01/2005 | 21 Comments

My 15 year old son's neurologists want to send him to an epilepsy clinic (UCLA) to evaluate him as a candidate for surgery. Right now I am very...
gamma knife

12/2004 | 5 Comments

Has anyone heard of or had gamma knife surgery for epilepsy? It's laser.
Expected Down Time

12/2004 | 2 Comments

Hi, I'm new to the discussion and I'm considering having the RTL surgery. If I do opt to have the surgery, I would like to know "what is the duration...
Brain SURGERY

12/2004 | 3 Comments

-Hi my name is Michael I had brain surgery 5 years ago and have remained seizure free for this period of time and I am still taking two 400 C tegretol...
surgery at 40

12/2004 | 50 Comments

I was diagnosed with grand mal seizures at the age of 13. I was really scared about the hole situation at hand, i have heard that there are surgerys...
New to Site

11/2004 | 0 Comments

Hi everyone. Found your site by accident as I was searching for information on a surgery that I might be having. I was diagnosed with a seizure...
Bald spots from long term EEG?

11/2004 | 1 Comments

Hi everyone, I got so much help before when I posted, I have another question for you. I wonder if someone else has ever had this problem. Bald spots...

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