Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Surgery and Devices

VNS threapy: Is it for me?

07/2005 | 6 Comments

Hello All,I am a 40 year old male who has had E all of my life. I am dealing with it well, sometimes (like all of us), I wish I didnt have E. I know...
Epilepsy Treatment Plan

07/2005 | 0 Comments

Several years after my seizures started in 1987, I started believing that it had something to do with my digestive system. Ever since July 1994, I...
Cataract Surgery

07/2005 | 7 Comments

I am afraid of cataract surgery if I have a seizure. How can I protect myself and is injury inevitable or not?
Surgery on June 14

06/2005 | 1 Comments

Hello everyone, Thank you for your kind words and support. Here is what happened. A couple of weeks before the surgery date a group of people came...
VNS(Experiences)

06/2005 | 35 Comments

Doctor suggested my using VNS and I hate idea. I need to know you if you've used it?
Help with the Insurance Company

06/2005 | 2 Comments

After years of adjusting his medicine, my boyfriend's neurologist referred him to a specialist (who was outside of his insurance network). His...
Parietal Lobe Surgery

05/2005 | 2 Comments

Our daughter has just done a video eeg. We thought the seizures were comming from the temporal lobe, but have now found they are originating in the...
elective brain surgery

05/2005 | 18 Comments

Hi, my name is Kathy and my twin sister has had epilepsy for 30 + yrs. She has been ok'd for left temporal lobe brain surgery in the near future. Is...
Home from having Brain Tumor removed

05/2005 | 16 Comments

hello there,I have posted many times here and thought I would update all of you on my progress. A week ago yesterday I had brain surgery to have a...
Refractory seizures and there increasing

05/2005 | 24 Comments

Hi I'm going through more again and again.Brain surgery I've had they won't operate on my left side .Right Side was operated on scar tissue was...
looking for opinions on surgery

04/2005 | 7 Comments

my seizures are left temporals, my MRI s show nothing abnormal. I have smaller seizures once a week, and a few gran mals a year. my meds are having...
VNs infor for those with VNS implant

04/2005 | 1 Comments

I have just returned from seeing my Epileptologist and reported how once the VNS was turned off I felt so much better and that my Seizures went from...
VNS clearly not for everyone!

04/2005 | 38 Comments

I had to post this here as I posted in the General Folder but I find this a good place this. I had the VNS implanted last Fall, lost my voice for 8...
SURGERY QUESTION - RECOVERY

04/2005 | 0 Comments

My husband had surgery 6 weeks ago. I wanted to know if anyone has had surgery on the right frontal lobe. I wanted to compare notes as to the "after"...
parietal epilepsy

03/2005 | 1 Comments

My Son, Collin, Has parietal epilepsy and he has been on 5 or 6 meds but, they are uncontrollable. Do you know of anyone who has had this type of...

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