Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Surgery and Devices

Dan's story

08/2006 | 0 Comments

Hi my name is Dan Winkowitsch I had brain surgery for epileptic seizures 7 years ago at Rochester Min.I am from Dumont ia it is a relief for me that i...
3yr old may need surgery - please help

08/2006 | 1 Comments

Hi, Our neurologists are suggesting we look into surgery for our three year old. She has quite a bit of brain damage on the rt side possibly from...
Wada test recovery?

08/2006 | 10 Comments

Just checking, I had the test done last week and the bruising is getting worse as is the swelling. Also have a smallish lump at the cathater site. Has...
Corpus Callosotomy

08/2006 | 0 Comments

My daughter is being considered for a Corpus Callosotomy. She is 36 years old and has had intractable seizures since early childhood. She has a VNS...
Help...front temporal lobe surgery

08/2006 | 1 Comments

Hello, I was hoping someone out there can help me. My sister, who just turned 30, recently underwent front temporal lobe surgery. 4 months have passed...
VNS

08/2006 | 4 Comments

Anyone out there still talking about VNS? I have had mine since Dec. 2004 and believe now that it screwed up my nerves. I didn't even notice it for...
VNS - What do I watch out for??

08/2006 | 7 Comments

My little boy (8 years old) will be having a VNS put in on Aug.22. I have been looking for information to tell me more about how it will affect him...
Surgery on a 3-year-old

07/2006 | 7 Comments

Hello, Our 3-year-old daughter has had seizures since she was 9 mo old. She was diagnosed with infantile spasms. She is significantly developmentally...
Surgery Results

07/2006 | 21 Comments

i have had complex partial seizures since i was 8. they r controled but not very well, i take lamicatl 200am 200pm and sometimes i get double vision...
Left Temporal Lobe Lobectomy Effects

07/2006 | 10 Comments

Hi there, I know it's too early to ask, but I was hoping for feedback. I can't help but wonder about the surgery effects, even though the option has...
i need urgent surgery

07/2006 | 0 Comments

hi i need surgery for my illness epilepsy since 1986 when i was 17 years my epilepsy was started during one shock in hot whether and tiredness and up...
Surgery at Johns Hopkins

07/2006 | 0 Comments

Has anyone on here had temporal lobe surgery at Johns Hopkins? I will be on August 3rd. Just curious, nervous, etc...
The Process for Surgery

06/2006 | 7 Comments

Hello All, I have had seizures since I was 10... now I am 26. I have been through alot as many of you.... I don't know exactly how I became epileptic...
Corpus Callosotomy Sugery

06/2006 | 5 Comments

My 8 yr old son has intractable epilepsy. He is severely developmentally delayed and three seizures meds plus the VNS. The latest "treatment" the...

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