Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Surgery and Devices

Brain Surgery Done - Now What?

04/2011 | 18 Comments

Well...Surgery on my front, left temporal lobe is NOW COMPLETE! Approx. 4 inches was removed. It has been a little over 4 weeks and I am seizure free...
Gamma Knife for PVNH??

04/2011 | 0 Comments

Hi Everyone. I am wondering if anyone has any information about the Gamma Knife procedure for epilepsy?? I have bilateral periventricular heterotopia...
no normal eegs,TLE , had week in EMU

04/2011 | 2 Comments

Dull week in general, no seizures, although my veeg throughout the week was again abnormal. Took me off my meds and remembered what I used to feel...
epilepsy

04/2011 | 0 Comments

I had surgery for my epilepsy after 40 yearsof suffering with it, six months ago. Yet still regularlyget goosepimples which always used to be the...
surgery corpus callosotomy

04/2011 | 5 Comments

Our son Sean had surgery Jan 26, 2010. He is down syndrome. It has cut his seizures in half. He woke up after a week and was paralazyed, couldn't not...
VNS and tumor development....???

04/2011 | 0 Comments

I am a RN that was diagnosed with epilepsy in 2007 at the age of 32. All testing normal, EEG, MRI, CT....but witnessed seizure activity by fellow...
Taking care of oneself after Surgery

04/2011 | 6 Comments

I am trying to decide whether or not to have surgery. I have a question for those that have had surgery. Are you able to take care of yourself after...
Johns Hopkins

03/2011 | 1 Comments

Has anyone had surgery at Johns Hopkins? I would be interested in hearing about the inpatient stay, the care received, the post-surgery care, etc. (...
NYU Epilepsy Center

03/2011 | 5 Comments

Does anyone have a particular physician to recommend at NYU' s Epilepsy Center? I am looking for a second opinion with a neurologist, for a discussion...
Recovering

03/2011 | 7 Comments

Hi everybody, I have had epilepsy since I was 15, never been able to control it so my neurologist sent me to Rush University Medical Center in Chicago...
Ganglioma Tumor and brain surgery

02/2011 | 1 Comments

My husband Bryan was diagnosed with a Ganglioglioma Tumor two months ago. He is choosing to remove the tumor and is scheduled for the 8th of March for...
MEG — Could it CURE your epilepsy?

02/2011 | 0 Comments

Regardless of your age or epilepsy syndrome, all patients of all ages deserve the possibility of living seizure-free. And for those with intractable...
Reading Music / Playing Piano / Surgery

02/2011 | 3 Comments

Is there anyone who has had surgery (temporal lobe surgery) who can speak to effects on ability to read music / play an instrument? I am terribly...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.