Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Surgery and Devices

vns replacement battery

11/2014 | 0 Comments

Hi, I'm new to using this site so I hope I'm doing it correctly. I had my vns implanted at the age of 14 in 2003. On Thursday Nov 6th 2014 I got a...
VEEGs, tests, and resection surgery

11/2014 | 0 Comments

I just completed my path to surgery. Thought I would start a "blog" to help put some information out there for others that have questions (tests...
Upcoming Surgery

11/2014 | 3 Comments

I am a 44 year old male who has had seizures for about 25 years. Up until a year ago my seizures were nothing more than simple partial seizures that...
How i got cured from epilepsy

11/2014 | 0 Comments

I am from Canada, I was diagnosed of Epilepsy in 2004 then i was just 17years, the disease is so disgracing and embarassing because atimes i get...
video monitoring EEG

10/2014 | 0 Comments

Hi everyone, I was just wondering if anyone has gone through the video monitoring EEG to determine which part of your brain your seizures are coming...
Birth Control and Seizures

10/2014 | 1 Comments

Hi, For the men in here, sorry!!!!! I tried posting this in the Womens' forum, but I got no response, so I'm trying this too. For those of us women on...
Does VNS affect your sleep?

08/2014 | 5 Comments

I am wondering if this device, and the feeling of it (going off and on) is annoying so much that it affects your sleep and relaxation? I understand...
Do OTC Pain Relievers Work

08/2014 | 1 Comments

Hi everyone, I had left temporal lobectomy three years ago. Since then, I have been using pain relievers nonstop, prescription for one month and over...
Lynda Wolfenbarger

07/2014 | 5 Comments

I have been cleared for a right temporal lobe surgery. I have had complex partial seizures for 46 years since I was 3 and have had to leave work...
The best surgeons in epilepsy

07/2014 | 0 Comments

Hi there! I have seizures since 2002 and tried all the medicines in my motherland,Turkey. Doctors say that there are no more effective medication in...
Right Temporal Lobectomy In Children

07/2014 | 1 Comments

We just learned that my 9 year old is a candidate for surgery - right temporal lobectomy. They believe he has cortical dysplasia. Can anyone share...
Hemispherectomy Surgery- Infantile Spasms

07/2014 | 0 Comments

Hello. My 11 month old suffered a Stroke sometime around birth, but was not diagnosed until 6 months. He is now scheduled for hemispherectomy surgery...
is surgery the right decision?

07/2014 | 1 Comments

Hello to everyone! I am a new to this. My dad has suffered with epilepsy for as long as he can remember and has just found out that he was born with...
Corpus colostomy

06/2014 | 0 Comments

Hi, my daughter had a 2/3 corpus colostomy 6 years ago. Sam has progressed to have many more seizures daily. She has been on every med and has a VNS...

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