Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

My son is a Fighter

12/2017 | 2 Comments

I have a 7 year old son who has had epilepsy since he was a day old. He also has cerebal palsy as well as being developmentally delayed.. As I wrote...
Epilepsy and Education

12/2017 | 1 Comments

I have idiopathic generalized Epilepsy as well as Juvenile Myclonic Epilepsy. I wanted to be more than someone with Epilepsy. I decided to get my...
After surgery

12/2017 | 3 Comments

What is the recovery like after the surgery? I heard it’s bad headache pain afterwards, which I would understand.
Young mom,epileptic & seperated

12/2017 | 1 Comments

Hello my name is Dianna. .New to all this , I do have epilepsy had it since I was 13. I am a mother of two young boys 6 & 2. Now never been married...
brain shivers

11/2017 | 10 Comments

Hello I am new here I have not been diagnosed with epilepsy however I have these things I call brain shivers basically I feel pressure building in the...
Does epilepsy cause aphasia?

11/2017 | 2 Comments

My mother had her first seizure in 1983 at the age of 38. To this day she does not know what caused it so late in life but she suspects that it's...
Hi

11/2017 | 1 Comments

I am 45 years old from San Jose, CA.
Hard life depression

11/2017 | 3 Comments

Hello friends. My name is Tyler Im 25 and I am from Hot Springs Arkansas. I just wanted to let out some of my personal events and vent a little due to...
reminder card seizure safety

11/2017 | 1 Comments

Hello! I want that medical personal and others give seizure safety reminder card with size of business card or send mail about it for parents or...
Are my seizures as rare as doctors say?

11/2017 | 1 Comments

My seizures began when I was 13 and at that point the neurologists had no clue what caused them. I was having everything from grand mal to simple...
Magnetism

11/2017 | 0 Comments

I've always thought Doc's can't/dare not tell us everything! As an ex electronics engineer I know that electric current flow is influenced by...
Has anyone else had this kind of seizure?

11/2017 | 0 Comments

Hi, everyone. I hope you can help me identify some seizure-type episodes I had as a child. I have experienced several grand mal seizures as an adult...
i dont know what to do . .

11/2017 | 4 Comments

my name is phia, i am 20 years old, but was diagnosed with epilepsy when i was 12 years old. epilepsy changed my world around. if i could tell my...
Share your story

11/2017 | 7 Comments

Hi. This is my first time posting on this forum! I'm so happy to have found this community, I'm curious about what your story is.
Share your story

11/2017 | 0 Comments

Hi. This is my first time posting on this forum! I'm so happy to have found this community, I'm curious about what your story is.

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